Two pages, both alike in
The first page is headed Getting out of bed in the morning and into bed at night. The second one is headed When you are in bed.
I very carefully and neatly started writing about the problems and techniques and equipment I use to get out of bed. I'd painstakingly written about eight lines before I had to stop. I sat with my eyes shut until I felt a bit better, then looked back down at the form and realised I'd written it all on the When you are in bed page.
I may have used interesting language.
Luckily I have plain paper and a pritt-stick which I am assured by the helpline people will be absolutely fine, happens all the time, nothing to worry about. That doesn't stop me feeling like a total wally though.
Tomorrow I'll try and sort it out. Today, I used up most of my energy going to see the doctor. I was quite nervous about this - the GP who's seen me since I was a kid is on maternity leave and the doctor who is covering for her isn't someone I'd seen before.
Doctors can be a bit funny about ME/CFS. I can't completely say I blame them - some people with ME get a bit evangelical about the whole thing, they read every bit of research and see their GPs once a fortnight and chase here there and everywhere following crazy therapies and are convinced they're allergic to The World and campaign for this that and the other to such an extent that one can't help wondering what they might achieve if they put such massive amounts of energy into something other than "illness". The trouble is, this puts people like me, who are less enthusiastically ill, at a bit of a disadvantage. I want a doctor to look at my notes, spot the diagnosis of ME/CFS and think "ah, so she suffers from mental and physical exhaustion, a certain amount of pain, sleep problems, etc," and then listen to me explain why I have come to see them, rather than think "oh god, not one of them. What wacky cure/pseudoscientific research am I going to have to hear about today?"
Luckily I don't tend to see the GP because of the ME/CFS stuff, only for acute illnesses, or at her request ("come back in 3 months for a review"), and I hope this works in my favour as establishing myself as Not A Timewaster. This particular visit was mainly about my ear now that I've completed the course of antibiotics. It's still a bit tender and itchy and, to use the new doctor's technical term after having looked in it, there's quite a bit of "green gunk" in there. Lovely. Ear drops and more pills, and come back to see her in three or four weeks.
She seemed nice, so I braced myself and told her the little worry that has been on my mind - as part of the DLA renewal, there are forms sent to your GP to fill out, which isn't a problem for my regular GP who has known me for ages, but might cause a hiccup for someone who's only ever seen me for six minutes about an ear infection. She smiled and said she'd already had one of those for another patient already, and what she would like to do is, when she gets the form, call me in for a long appointment to go through it and dig up any information that isn't readily available in my notes. So there's another big sigh of relief.
In other news, I've broken my kitchen. One of the drawers (the cutlery drawer to be precise) has come apart, not badly or irreparably, but the side pieces of chipboard that had been glued together are no longer together. Suggestions about the best product to fix it with are welcome.