I'm going to attempt to claim DLA again. Yes, I know. Don't ask.
I've been going through the members' resources at Benefits and Work and it looks like where I'm really going to fall down is that I have not maintained a raft of professionals to back me up.
My condition cannot be 'cured', the best the medical profession can do for me is help me to control my symptoms.
The first year of my illness, I had any amount of assessments and tests, physical, neurological, psychiatric, you name it, and I was tried on all sorts of different medications and treatments (within the constraints of NHS provision) until we found the optimum combination for controlling my symptoms - not perfect by a long way, but the best we could do.
After which, my medical treatment pretty much dwindled to a repeat prescription every month, and the occasional GP appointment if something acute happened. There was no point remaining on the books for the Pain Clinic or the neurologist or the butcher, baker or candle-stick maker, knackering myself out by hiking off to appointments at hospitals ten or twenty miles away. They had nothing further to offer me.
Wrong. There was a point. They could have provided extra confirmation about my condition and my limitations to the DWP. As it is, the DWP have a computer, and if the computer sees that I am only treated by my GP, and that I've only had a few appointments with my GP in the last 12 months... then it will calculate that there isn't much wrong with me and send me on my way. There are no prizes for attempting to "not be a burden on the NHS" and so on. That's not playing the game properly, it seems.
I have to try and convince the humans that the computers have it wrong on this one.
I'm going to be working on this for a while, blogging might become minimised.