About a week ago, the 2011 UK Census dropped through our door along with more or less every other door in the country.
The instructions on the front require people to fill in the questionnaire on or as soon as possible after 27th March 2011.
This is probably why the letters page of the Times on the 9th March carried indignant missives from people complaining that they'd filled in the form already and attempted to post it back but couldn't fit it in the postbox (I'd link but it was a paper copy of the Times that I'd picked up in a McDonalds in Norwich). I think that if we applied DWP form-filling rules and charged every household who couldn't follow that instruction £50, we'd have a chunk off the deficit in no time or at least be able to fund an adult education programme in English Reading and Comprehension.
The other bit which makes me smile is the indignation about a thirty-two page form!!!!! which is considered by many members of 'alarm clock Britain' to be an astonishing amount of difficult and time consuming paperwork, while us filthy disableds are going "only 32 pages, sweet!"
Better yet, once you're past the opening questions about "how many people live here" and "list their names", there's only four pages per person and most of that is tick boxes. I can't imagine it taking anyone more than five minutes unless they live in a house full of people who are unable to fill out the form on their own behalf, in which case we'll call it half an hour but that includes finding a biro that works.
Finally, I'd like to encourage all my readers to take the advice of the excellent @Scaryduck on the thorny issue of Question 17.
Showing posts with label forms. Show all posts
Showing posts with label forms. Show all posts
Tuesday, March 15, 2011
Saturday, February 19, 2011
To err is human...
... but if you do it on DWP forms, you can expect a fine.
A £50 fine, to be precise, although that's just a starting figure. It could be as much as £300.
Apparently the point of this fine is to get claimants to take "responsibility" for their claims, because "I have to fill in this form right or I won't have any money for rent, bills or food" doesn't have enough impact on your life to make you take it seriously. Or something.
Leaving aside the class war bit where a bunch of millionaires (who make plenty of "mistakes" in their own benefit claims and consider £50 to be the cost of lunch) are imposing these fines on DWP claimants who are, for obvious reasons, some of the poorest people in the country for whom £50 is two weeks' groceries or more...
I'm reasonably bright. Not exceptionally so, but I have my selection of higher-tier grade GCSEs including English and Maths, I've been able to read and write since before I started primary school, most of the jobs I've held have had some sort of administrative element. I should be as well-equipped as anyone to fill out those forms correctly, and I have a distinct advantage over many claimants who are less academically inclined.
And I have made errors on my claims.
The first one, was when I first got sick and lost my job. Let's set the scene. I'm in my early twenties. I'm sick, so sick I cannot work, and more or less confined to bed so that I can manage the big bursts of effort needed to go out (I haven't yet been taught about pacing). I don't yet know what's wrong with me, so I'm scared. I have no income and the Jobcentre have given me three forms. The biggest one is for Incapacity Benefit. The next biggest is for Housing and Council Tax Benefit. The smallest - which is still some thirty or forty pages - is for Income Support, which I am told is a "safety net" in case my Incapacity claim is rejected.
Bear in mind the reason for my claim was that I was too sick to work in my mostly office-based job. I had something symptomatically akin to 'flu. I was not in a top form-filling state.
I worked on the forms as best I could. By the time I got to the IS one, time was running out, but I did my best and felt quite proud of myself for finishing it all within the deadline.
My mistake? In the Pensions section. Having ticked that no, I was not in receipt of any pensions, I was told to go to the next section of the form. So I skipped over all the questions about what type of pension do you have to the next section of the form, About Other Benefits. What I missed, was that "War Pensions", although tacked onto the end of "Pensions", was in fact a section in its own right - a one-inch strip with the single question are you in receipt of a War Pension and Yes/No tickboxes. The form was sent back to me, red-penned and with a stern letter of admonishment.
I've also made errors on my DLA forms before now, again usually at the level of missing a tickbox, although thankfully I've always caught them before sending.
The BBC article says:
Well, yes. If my incorrectly completed form and nasty letter had also included a £50 fine, I certainly wouldn't have had it in me to argue the toss, because I was too sick to do so, and THAT was the reason why I was filling in the forms in the first place.
That's the thing about benefits. You claim them when your life gets to a desperate stage. You're sick, perhaps terminally so. Your spouse has emptied the joint account and run off with So-and-so from Marketing, leaving you with a broken heart, no money and two kids who want to know where Mummy/Daddy's gone. You've finally managed to get up the courage to get out of a violent and abusive relationship even though you took nothing with you other than the clothes you stand up in. At the very least, you've lost your job. You're stressed. You're upset. You're running around trying to improve your situation and get back something which is recognisable as Your Life, whether that means you're attending countless hospital appointments or applying for countless jobs, and on top of this, the Jobcentre have presented you with over a hundred pages of forms to fill in?
And while we're at it, let's not forget the cuts to legal aid and the closures of Citizens' Advice Bureau offices which will make it even harder for people to get help filling in forms or conducting appeals. Nice one, George. Withdraw the support, thereby increasing the rate of mistakes, then charge people for those mistakes on the basis that they'll be unable to argue. It would make a wonderful Dilbert cartoon, if only it weren't targeted at real and vulnerable people at their time of need.
Minor mistakes are inevitable when people in these circumstances are filling in these forms. Fining people who can't afford to pay but aren't in a position to defend themselves, is appalling.
A £50 fine, to be precise, although that's just a starting figure. It could be as much as £300.
Apparently the point of this fine is to get claimants to take "responsibility" for their claims, because "I have to fill in this form right or I won't have any money for rent, bills or food" doesn't have enough impact on your life to make you take it seriously. Or something.
Leaving aside the class war bit where a bunch of millionaires (who make plenty of "mistakes" in their own benefit claims and consider £50 to be the cost of lunch) are imposing these fines on DWP claimants who are, for obvious reasons, some of the poorest people in the country for whom £50 is two weeks' groceries or more...
I'm reasonably bright. Not exceptionally so, but I have my selection of higher-tier grade GCSEs including English and Maths, I've been able to read and write since before I started primary school, most of the jobs I've held have had some sort of administrative element. I should be as well-equipped as anyone to fill out those forms correctly, and I have a distinct advantage over many claimants who are less academically inclined.
And I have made errors on my claims.
The first one, was when I first got sick and lost my job. Let's set the scene. I'm in my early twenties. I'm sick, so sick I cannot work, and more or less confined to bed so that I can manage the big bursts of effort needed to go out (I haven't yet been taught about pacing). I don't yet know what's wrong with me, so I'm scared. I have no income and the Jobcentre have given me three forms. The biggest one is for Incapacity Benefit. The next biggest is for Housing and Council Tax Benefit. The smallest - which is still some thirty or forty pages - is for Income Support, which I am told is a "safety net" in case my Incapacity claim is rejected.
Bear in mind the reason for my claim was that I was too sick to work in my mostly office-based job. I had something symptomatically akin to 'flu. I was not in a top form-filling state.
I worked on the forms as best I could. By the time I got to the IS one, time was running out, but I did my best and felt quite proud of myself for finishing it all within the deadline.
My mistake? In the Pensions section. Having ticked that no, I was not in receipt of any pensions, I was told to go to the next section of the form. So I skipped over all the questions about what type of pension do you have to the next section of the form, About Other Benefits. What I missed, was that "War Pensions", although tacked onto the end of "Pensions", was in fact a section in its own right - a one-inch strip with the single question are you in receipt of a War Pension and Yes/No tickboxes. The form was sent back to me, red-penned and with a stern letter of admonishment.
I've also made errors on my DLA forms before now, again usually at the level of missing a tickbox, although thankfully I've always caught them before sending.
The BBC article says:
The proposals also reveal that the government assumes there will be very few appeals against these fines.
Well, yes. If my incorrectly completed form and nasty letter had also included a £50 fine, I certainly wouldn't have had it in me to argue the toss, because I was too sick to do so, and THAT was the reason why I was filling in the forms in the first place.
That's the thing about benefits. You claim them when your life gets to a desperate stage. You're sick, perhaps terminally so. Your spouse has emptied the joint account and run off with So-and-so from Marketing, leaving you with a broken heart, no money and two kids who want to know where Mummy/Daddy's gone. You've finally managed to get up the courage to get out of a violent and abusive relationship even though you took nothing with you other than the clothes you stand up in. At the very least, you've lost your job. You're stressed. You're upset. You're running around trying to improve your situation and get back something which is recognisable as Your Life, whether that means you're attending countless hospital appointments or applying for countless jobs, and on top of this, the Jobcentre have presented you with over a hundred pages of forms to fill in?
And while we're at it, let's not forget the cuts to legal aid and the closures of Citizens' Advice Bureau offices which will make it even harder for people to get help filling in forms or conducting appeals. Nice one, George. Withdraw the support, thereby increasing the rate of mistakes, then charge people for those mistakes on the basis that they'll be unable to argue. It would make a wonderful Dilbert cartoon, if only it weren't targeted at real and vulnerable people at their time of need.
Minor mistakes are inevitable when people in these circumstances are filling in these forms. Fining people who can't afford to pay but aren't in a position to defend themselves, is appalling.
Tuesday, January 19, 2010
DLA exam
This morning I had my medical examination for my DLA renewal.
A big thank you to everyone who left such supportive and encouraging comments on my last post - it really helped me to stay calm about the whole thing.
The doctor arrived on time and stayed for just under an hour, which is good as the examination is supposed to take between 20 and 60 minutes. He came across as a pleasant and professional man. He was patient when I was struggling with things and gave the impression of listening to what I was saying. He took an awful lot of notes and appeared to be trying to understand, although of course he also made several efforts to catch me out. He did seem a little perplexed about why he was being asked to examine me for a renewal rather than a new claim.
I don't know if he believed a word I said and I have no idea what he wrote down. But on the whole I am happy with how the examination went. My PA was also present and she felt it had gone well - that I had presented openly and honestly and that I had made my difficulties clear without exaggerating.
And now I can stop worrying until the next letter turns up.
A big thank you to everyone who left such supportive and encouraging comments on my last post - it really helped me to stay calm about the whole thing.
The doctor arrived on time and stayed for just under an hour, which is good as the examination is supposed to take between 20 and 60 minutes. He came across as a pleasant and professional man. He was patient when I was struggling with things and gave the impression of listening to what I was saying. He took an awful lot of notes and appeared to be trying to understand, although of course he also made several efforts to catch me out. He did seem a little perplexed about why he was being asked to examine me for a renewal rather than a new claim.
I don't know if he believed a word I said and I have no idea what he wrote down. But on the whole I am happy with how the examination went. My PA was also present and she felt it had gone well - that I had presented openly and honestly and that I had made my difficulties clear without exaggerating.
And now I can stop worrying until the next letter turns up.
Tuesday, January 12, 2010
Medical Examination
So, Disability Living Allowance, also known as DLA and a great source of both help and stress. To recap, this is the money given to disabled people regardless of income or work status, to help meet some of the unavoidable extra costs associated with disability, from wheelchairs to incontinence pads to home delivery fees to Meals On Wheels. It's split into Care and Mobility components, awarded at different levels depending on the extent of difficulty you have with each of these aspects.
Now, a quick timeline. I applied for DLA again in February 2008. I was turned down and asked for an appeal. This took until October 2008 to arrange. I won and a backdated award was made, for two years starting from February 2008 when I had first applied. So the award expires in February 2010.
As such, I got a renewal pack in October 2009 - they give you plenty of time so that you have a chance to access support from the Citizen's Advice Bureau or similar organisations. In November I sent off the completed renewal pack, including:
In addition they will have written to my GP for her opinion, and she will have written back in support of my application, just like she did last time.
But they say that they "do not have enough information."
They want me to be examined by a doctor from ATOS healthcare next week.
I'm not entirely sure what that doctor is supposed to discover in his 20-60 minute session that has not already been provided in my own testimony and corroborated by several different types of person associated with my care. Especially considering that there are no easy or visible diagnostic criteria for ME/CFS. It's not like counting the limbs of someone who claimed on their form to have had two legs amputated and going "yep, looks like you are right after all". Variable and invisible conditions are a little more complicated.
He will be coming to my house, so I have a glimmer of hope that he just wants to check that I do have the assistive devices I claimed to use and that they're not covered in dust, that my to-do list doesn't include renewing my subscription to Hill Walker Weekly, and that I say "ow" often enough.
But even though I tell myself this... even though I know I successfully appealed once and can do it again if I have to... even though I know I have not lied on my forms... even though I know the doctor will get paid regardless of what he says about me... I've known a few too many people with a few too many horror stories about medical examinations for benefits purposes, up to and including doctors getting a claimant's condition wrong, writing down things they had not asked about and could not possibly have observed, bullying claimants into signing blank forms, and in one memorable instance, ticking the wrong gender box.
I think it's like when people are pregnant, and everyone comes forward with the stories of six weeks of labour, of a hundred stitches inside and out, of the midwife being busy and the cleaner having to do an emergency C-section using only a biro... and even though you know it probably won't happen to you, it preys on your mind. What I could do with right now, if anyone has the time, is a few comments saying "I had an ATOS medical examination, it wasn't a problem, the doctor was on time, he was nice, he listened to what I said before writing it down, let me take my time, and a few weeks later I was given an indefinite award at what I feel was the correct level."
Please?
Now, a quick timeline. I applied for DLA again in February 2008. I was turned down and asked for an appeal. This took until October 2008 to arrange. I won and a backdated award was made, for two years starting from February 2008 when I had first applied. So the award expires in February 2010.
As such, I got a renewal pack in October 2009 - they give you plenty of time so that you have a chance to access support from the Citizen's Advice Bureau or similar organisations. In November I sent off the completed renewal pack, including:
- Their 40-page form, completed with the basic and general answers.
- A typed 26-page document giving the more detailed answers they ask you to provide to their questions, including information about good and bad days, equipment I use and how I use it, support I receive and so on, because these answers just don't fit into answer-spaces the size of a credit card on the form.
- A copy of my current medication and equipment prescriptions.
- A copy of my Social Services care plan and contact details for my social worker, occupational therapist, GP, Access to Work adviser and everyone else associated with my disability needs.
- A statement from Steve as someone who lives with me.
- A statement from my PA as a person who is paid to look after me.
- A medical report from the ME/CFS specialist who formally assessed and diagnosed me.
In addition they will have written to my GP for her opinion, and she will have written back in support of my application, just like she did last time.
But they say that they "do not have enough information."
They want me to be examined by a doctor from ATOS healthcare next week.
I'm not entirely sure what that doctor is supposed to discover in his 20-60 minute session that has not already been provided in my own testimony and corroborated by several different types of person associated with my care. Especially considering that there are no easy or visible diagnostic criteria for ME/CFS. It's not like counting the limbs of someone who claimed on their form to have had two legs amputated and going "yep, looks like you are right after all". Variable and invisible conditions are a little more complicated.
He will be coming to my house, so I have a glimmer of hope that he just wants to check that I do have the assistive devices I claimed to use and that they're not covered in dust, that my to-do list doesn't include renewing my subscription to Hill Walker Weekly, and that I say "ow" often enough.
But even though I tell myself this... even though I know I successfully appealed once and can do it again if I have to... even though I know I have not lied on my forms... even though I know the doctor will get paid regardless of what he says about me... I've known a few too many people with a few too many horror stories about medical examinations for benefits purposes, up to and including doctors getting a claimant's condition wrong, writing down things they had not asked about and could not possibly have observed, bullying claimants into signing blank forms, and in one memorable instance, ticking the wrong gender box.
I think it's like when people are pregnant, and everyone comes forward with the stories of six weeks of labour, of a hundred stitches inside and out, of the midwife being busy and the cleaner having to do an emergency C-section using only a biro... and even though you know it probably won't happen to you, it preys on your mind. What I could do with right now, if anyone has the time, is a few comments saying "I had an ATOS medical examination, it wasn't a problem, the doctor was on time, he was nice, he listened to what I said before writing it down, let me take my time, and a few weeks later I was given an indefinite award at what I feel was the correct level."
Please?
Sunday, November 08, 2009
There is no pause button on my life.
I feel that this is an appalling oversight on the part of the manufacturers. Still, what do we do?
So, I've resigned from my job and the final details have been ironed out. I officially finish at the end of this month, but I have quite a chunk of annual leave left to use up so my last actual working day is Tuesday 10th November.
My handy printout from the nice lady who does the payroll confirms that I only had one and a half days off sick in the last 12 months, which is way below average, even pro rata, and should be a jobsearch asset. I turned myself inside out to keep it that way and I'm so glad I didn't have to screw it up at the end by getting signed off.
It still stings quite a bit that leaving the job wasn't entirely my choice - I could have stayed another few months but would have been trying to work (a) without any additional support or equipment to deal with the increased demands, and (b) in the explicit knowledge that I was not wanted there. But I am still convinced that my decision to not attempt to drag it through the courts is the right one. I would rather use my energy on dealing with the necessities of life (considers another YouTube clip, decides against it) and have a bit left over for, you know, enjoying myself.
I have managed to complete my draft answers for my DLA form, which this time round is just over 19,000 words. It saved a lot of typing that I already had my answers from last time in electronic form, but it wasn't just a straight copy/paste job because they've shuffled the order of the questions, and merged some questions and split others up differently. Although my needs haven't changed, I also had to change some answers to account for factors like the PA and the social worker that I didn't have last time - for instance, whereas last time I wrote "I would like to go swimming, the help I would need for this is XYZ," this time it was more "When I go swimming my PA helps me with XYZ." The help I need is the same but the context has altered and the form must accurately reflect the current situation.
I've got all of my Social Services paperwork up to date as well, which is a relief after the collision of two separate threads of PA issues and the Monitoring Return. Better yet, the Monitoring Return was approved without query and I don't have to do another one until January.
My Access to Work advisor got back to me, and says that although I'll have to re-apply for support with my job as I switch from PAYE to self-employed, since I'm on the books and my needs haven't changed it should go through quite smoothly. I've prepared my "final" forms for my transport support, ready to be stamped and signed by my soon-to-be-ex-manager on Tuesday.
So, all that stuff dealt with, I think after Wednesday I can properly apply myself to researching things like Business Link and getting everything in place to embark on the self-employed adventure in December.
One question. I hear that when I set up as self-employed, I have to give my 'business' a name. Apparently many people use their own names, but I don't really like my full name and I'm not sure I want it to be google-searchable either. I'll probably end up with a generic [name of business advisory service][client number] combo, but if anyone has any ideas I'd be interested to hear them.
So, I've resigned from my job and the final details have been ironed out. I officially finish at the end of this month, but I have quite a chunk of annual leave left to use up so my last actual working day is Tuesday 10th November.
My handy printout from the nice lady who does the payroll confirms that I only had one and a half days off sick in the last 12 months, which is way below average, even pro rata, and should be a jobsearch asset. I turned myself inside out to keep it that way and I'm so glad I didn't have to screw it up at the end by getting signed off.
It still stings quite a bit that leaving the job wasn't entirely my choice - I could have stayed another few months but would have been trying to work (a) without any additional support or equipment to deal with the increased demands, and (b) in the explicit knowledge that I was not wanted there. But I am still convinced that my decision to not attempt to drag it through the courts is the right one. I would rather use my energy on dealing with the necessities of life (considers another YouTube clip, decides against it) and have a bit left over for, you know, enjoying myself.
I have managed to complete my draft answers for my DLA form, which this time round is just over 19,000 words. It saved a lot of typing that I already had my answers from last time in electronic form, but it wasn't just a straight copy/paste job because they've shuffled the order of the questions, and merged some questions and split others up differently. Although my needs haven't changed, I also had to change some answers to account for factors like the PA and the social worker that I didn't have last time - for instance, whereas last time I wrote "I would like to go swimming, the help I would need for this is XYZ," this time it was more "When I go swimming my PA helps me with XYZ." The help I need is the same but the context has altered and the form must accurately reflect the current situation.
I've got all of my Social Services paperwork up to date as well, which is a relief after the collision of two separate threads of PA issues and the Monitoring Return. Better yet, the Monitoring Return was approved without query and I don't have to do another one until January.
My Access to Work advisor got back to me, and says that although I'll have to re-apply for support with my job as I switch from PAYE to self-employed, since I'm on the books and my needs haven't changed it should go through quite smoothly. I've prepared my "final" forms for my transport support, ready to be stamped and signed by my soon-to-be-ex-manager on Tuesday.
So, all that stuff dealt with, I think after Wednesday I can properly apply myself to researching things like Business Link and getting everything in place to embark on the self-employed adventure in December.
One question. I hear that when I set up as self-employed, I have to give my 'business' a name. Apparently many people use their own names, but I don't really like my full name and I'm not sure I want it to be google-searchable either. I'll probably end up with a generic [name of business advisory service][client number] combo, but if anyone has any ideas I'd be interested to hear them.
Wednesday, October 21, 2009
Stuck!
As per the plan I detailed last time, today my PA and I set off for the local Citizen's Advice Bureau, to see about getting help with the DLA forms.
The CAB is at the end of a long terrace of gorgeous Regency houses that have been converted into offices. In other words, steps all over the place, mostly without so much as a handrail. But charity sector and public sector buildings tend to do much better on access than private sector businesses, and as such there is an outdoor lift at the side of the CAB's building. Hurrah! At exactly 10am, which is when they open, we rolled up to the lift-gate, read the instructions, and twisted the red gate-release button. Nothing. Pressed and twisted the red button. Nothing. Pressed the lift-call button to make sure the lift was properly down (often they won't open unless they're right at ground level). Nothing.
Feeling incredibly fortunate to have a PA, I sent her to the top of the stairs to see if it worked at the top (or to put it another way, "is this thing on?"). Yes, the lift call button at the top worked, the lift rose majestically, and the gate at the top opened. Now that the lift was up, my call-button at the bottom worked to make it come down again... but would the red gate-release button release the gate? Would it hell.
Okay, never mind. I asked my PA to go inside and see if she could find a staff member who would come out and either (a) say "ah yes, we know that button is broken and this is how we deal with it," or alternatively, (b) take my details and arrange an appointment at a different building without me having to physically go into the CAB.
*sigh*
What we got was a staff member who assumed my PA was on about a child in a pushchair and who looked horrified when she saw me sitting there. I sat in the cold, damp alley and shivered while she went through all the button-pressing sequences we had, to no avail, and went back inside to ask for help.
So then there were three different staff members milling about outside. Volunteer One was standing at the top of the stairs, ineffectually musing about how they'd had the lift repaired only a couple of weeks ago and wasn't it awful, you would think an outdoor lift would work outdoors, the whole thing was a big waste of money. Volunteer Two, after a few minutes, decided to give up on the lift, apologised to me, and asked if I'd mind awfully if she took my details outside and then she'd arrange for a referral to a specialist advisor who would phone me to make an appointment. I'd have been happy enough with that, but then the third staff member, who'd been raising and lowering and prodding and rattling the lift, made a triumphant sound and opened the bottom gate. And they all looked at me, expectantly, and my PA and I looked at each other, in horror.
See, stranded at the bottom of the stairs with a non-functional lift is not too much of a problem. You are effectively locked out of the building, but you can cut your losses and get from where you are to just about anywhere else - including your car and your house. Stranded at the top is a different matter entirely. You are effectively locked in and can't go anywhere.
Did we trust this lift to not only get us safely to the top, but also to deliver us back to the bottom and let us out again?
Well, no, not really, but three volunteers, none of whom were dressed for being outdoors in October, were standing around waiting for us to embark - one with a very pleased grin at his success in opening the gate - and I wasn't up to an argument. We rolled on and did our best not to wince as the gate clanged shut behind us.
Now, to be fair, once we were inside the building everything went marvellously well. Since I'd already explained my situation and had a certain amount of advice from Volunteer Two, I didn't have to queue behind all the people who'd walked in while I was sitting at the bottom of the lift, she just carried on sorting out the referral as she would have done if I was still outdoors. It was arranged that an outreach worker specialising in disability would call me in the afternoon to arrange an appointment at a rather more accessible premises that also happens to be nearer to my end of town. Pleased with this, we left.
Or tried to. Because, unsurprisingly, the bottom gate refused to open, and this time, we were on the wrong side of it.
Now, I'm going to take a moment to describe this lift. An effort - a very creditable effort - has been made to make it fit in with the surrounding architecture. Or to put it another way, the safety barrier all around the lift is five-foot-tall black iron spiky railings, to match the ones adorning the other houses. However, it is difficult to feel the proper appreciation for such attractive and thoughtful design when you are trapped inside it and staring out through bars getting gently drizzled on, while a couple more volunteers, neither of whom were present at the original effort to open the bottom gate, poke and prod and make useful observations such as the fact the top gate opens.
This in turn made us late (not to mention cold, bedraggled and miserable) for the Social Services meeting, but at least we had a good excuse.
The CAB is at the end of a long terrace of gorgeous Regency houses that have been converted into offices. In other words, steps all over the place, mostly without so much as a handrail. But charity sector and public sector buildings tend to do much better on access than private sector businesses, and as such there is an outdoor lift at the side of the CAB's building. Hurrah! At exactly 10am, which is when they open, we rolled up to the lift-gate, read the instructions, and twisted the red gate-release button. Nothing. Pressed and twisted the red button. Nothing. Pressed the lift-call button to make sure the lift was properly down (often they won't open unless they're right at ground level). Nothing.
Feeling incredibly fortunate to have a PA, I sent her to the top of the stairs to see if it worked at the top (or to put it another way, "is this thing on?"). Yes, the lift call button at the top worked, the lift rose majestically, and the gate at the top opened. Now that the lift was up, my call-button at the bottom worked to make it come down again... but would the red gate-release button release the gate? Would it hell.
Okay, never mind. I asked my PA to go inside and see if she could find a staff member who would come out and either (a) say "ah yes, we know that button is broken and this is how we deal with it," or alternatively, (b) take my details and arrange an appointment at a different building without me having to physically go into the CAB.
*sigh*
What we got was a staff member who assumed my PA was on about a child in a pushchair and who looked horrified when she saw me sitting there. I sat in the cold, damp alley and shivered while she went through all the button-pressing sequences we had, to no avail, and went back inside to ask for help.
So then there were three different staff members milling about outside. Volunteer One was standing at the top of the stairs, ineffectually musing about how they'd had the lift repaired only a couple of weeks ago and wasn't it awful, you would think an outdoor lift would work outdoors, the whole thing was a big waste of money. Volunteer Two, after a few minutes, decided to give up on the lift, apologised to me, and asked if I'd mind awfully if she took my details outside and then she'd arrange for a referral to a specialist advisor who would phone me to make an appointment. I'd have been happy enough with that, but then the third staff member, who'd been raising and lowering and prodding and rattling the lift, made a triumphant sound and opened the bottom gate. And they all looked at me, expectantly, and my PA and I looked at each other, in horror.
See, stranded at the bottom of the stairs with a non-functional lift is not too much of a problem. You are effectively locked out of the building, but you can cut your losses and get from where you are to just about anywhere else - including your car and your house. Stranded at the top is a different matter entirely. You are effectively locked in and can't go anywhere.
Did we trust this lift to not only get us safely to the top, but also to deliver us back to the bottom and let us out again?
Well, no, not really, but three volunteers, none of whom were dressed for being outdoors in October, were standing around waiting for us to embark - one with a very pleased grin at his success in opening the gate - and I wasn't up to an argument. We rolled on and did our best not to wince as the gate clanged shut behind us.
Now, to be fair, once we were inside the building everything went marvellously well. Since I'd already explained my situation and had a certain amount of advice from Volunteer Two, I didn't have to queue behind all the people who'd walked in while I was sitting at the bottom of the lift, she just carried on sorting out the referral as she would have done if I was still outdoors. It was arranged that an outreach worker specialising in disability would call me in the afternoon to arrange an appointment at a rather more accessible premises that also happens to be nearer to my end of town. Pleased with this, we left.
Or tried to. Because, unsurprisingly, the bottom gate refused to open, and this time, we were on the wrong side of it.
Now, I'm going to take a moment to describe this lift. An effort - a very creditable effort - has been made to make it fit in with the surrounding architecture. Or to put it another way, the safety barrier all around the lift is five-foot-tall black iron spiky railings, to match the ones adorning the other houses. However, it is difficult to feel the proper appreciation for such attractive and thoughtful design when you are trapped inside it and staring out through bars getting gently drizzled on, while a couple more volunteers, neither of whom were present at the original effort to open the bottom gate, poke and prod and make useful observations such as the fact the top gate opens.
This in turn made us late (not to mention cold, bedraggled and miserable) for the Social Services meeting, but at least we had a good excuse.
Monday, October 19, 2009
Frustration
Following on from my previous post, I was not successful in contacting the Citizen's Advice Bureau this evening as per the advice on the front page of the DLA form.
We're not talking about getting the form filled out for me, or anything. We're talking about getting through to a receptionist of some sort to try and make an appointment to get some "proper" advice at a later date. Or possibly to ask if there's a different local organisation I could approach for help.
I got home from work and started playing the redial game right up until 7pm when the line closes. All I got was a 'busy' tone.
They're closed all tomorrow, so I'll try again on Wednesday - might get my PA to take me to their office in town, although I can't play their "sit in reception until someone's available" game as I have one of those previously mentioned Social Services meetings to attend halfway through the day.
Like I said before, it's not the fault of the volunteer-staffed, underfunded CAB. But I think it's bloody cheeky of the DWP to advise me that for help with their bureaucracy, I need to access a service that is so flooded with demand that I can't even get through to speak to a receptionist on the phone.
We're not talking about getting the form filled out for me, or anything. We're talking about getting through to a receptionist of some sort to try and make an appointment to get some "proper" advice at a later date. Or possibly to ask if there's a different local organisation I could approach for help.
I got home from work and started playing the redial game right up until 7pm when the line closes. All I got was a 'busy' tone.
They're closed all tomorrow, so I'll try again on Wednesday - might get my PA to take me to their office in town, although I can't play their "sit in reception until someone's available" game as I have one of those previously mentioned Social Services meetings to attend halfway through the day.
Like I said before, it's not the fault of the volunteer-staffed, underfunded CAB. But I think it's bloody cheeky of the DWP to advise me that for help with their bureaucracy, I need to access a service that is so flooded with demand that I can't even get through to speak to a receptionist on the phone.
Saturday, October 17, 2009
And then the rain came down
Things have suddenly become Busy here in the land of Mary. Let's see, where were we up to...
The Second Job has started and is going well. Access to Work agreed that I should have an ergonomic keyboard and mouse, which I bought and they should be refunding at the end of this month. I also explained about how I would be mostly working at home but would occasionally need transport to go to what you might call Company Headquarters, in order to be shown how to do things, or given materials to work with, or to speak to my manager in person. So instead of being approved for "up to 10 journeys a week" (eg five trips To and five trips From work) like I am for my main job, I've been approved for "up to 104 journeys a year", which on average is a To and a From each week, but acknowledges that my working pattern is very, very flexible.
I had a second attempt at the chocolate cornflake cakes, this time using proper dark cooking chocolate. It worked much better than my Galaxy/cocoa powder/water combination. I'd show you a picture, but we ate most of them at knitting night. It probably would have been all of them but we felt we should save one or two for Steve. I would like to thank the ladies for sincerely congratulating me on my achievement without any sniggering.
I got my Direct Payments Monitoring Return completed and sent off. The stamped printout of the transactions for the period covered by the missing statement never did arrive - no idea whether that's the fault of the bank, or the fault of the Royal Mail, although I know which I think is more likely - so instead I made copies of the wage slip and BACS slip for that month and added a post-it note explaining that the statement was lost in the post, but this is what went in and out of the account and look, it tallies up with the end balance on the previous statement and the start balance on the next one. I'm sure they'll contact me if that isn't good enough.
So yeah, all in all I was feeling pretty proud of myself for keeping on top of it all and having everything ticking over.
And then the rain came down.
In among the self-perpetuating drizzle of increased pain levels because of the damp and cold, and grottiness because of increased painkiller side-effects, and getting frustrated and stressed because the grottiness makes it hard to think and the pain makes it hard for me to move so I can't DO things, and extra pain because the stress makes me tense, round and round and round, are a couple of real thunderclouds.
Firstly, my PA told me of a couple of issues that may affect her ability to work for me. I respect her confidentiality as I expect her to respect mine, so all I'll say on that front is: she's a great PA, I'm happy employing her, she's happy working for me, and it isn't anything that either of us have "done wrong", it's just one of those things. But what I can say is that, as an employer, I'm having to increase the gradient of my learning curve to perilously steep levels in order to keep up with what our respective rights and responsibilities are in this situation. I'm also having to spend a few extra hours on the phone and having meetings during the daytime, which interferes with my ability to save enough spoons for work.
Secondly, it's DLA time again. The form is a new one - shaved down to 40 pages of personal and depressing questions rather than the 50+ it was previously - but from what I can see, this has mostly been achieved by trimming down the spaces given for the non-tick-box questions. For instance, the question about help needed to take part in "hobbies, interests, social or religious activities" used to be close on three pages. Now, they provide two 5cmx16cm boxes, one for activities at home, one for activities when you go out. Which I guess is more than adequate if you don't need much help, but if you don't need much help, why would you be applying for DLA?
So Monday evening will be spent trying to contact the Citizens Advice Bureau by telephone (the local CAB is only manned four days a week, for five hours at a time, most of which I am at work). I'm hoping my combination of disability and having a job will be enough for them to allow me to make an appointment. Obviously I'll have to take time off work for such an appointment, but it would still be much better for me than the usual process where you go to the office and sit in the waiting room for however many hours it takes until someone becomes available, and if they don't become available, you come back the next day. It's not the fault of the CAB, who are staffed by volunteers and chronically underfunded for the amount of support they are meant to provide. But it does make it that little bit more inaccessible for those who need it, and it's another thing that shouldn't be soaking up my limited annual leave allowance.
Every time, this makes me angry. Services and support tend to assume a disabled person has an infinite amount of spare time, energy, money, learning capacity, and administrative ability at their fingertips. Get off benefit! Go to work! Squeeze all this crud in on top! How?
The Second Job has started and is going well. Access to Work agreed that I should have an ergonomic keyboard and mouse, which I bought and they should be refunding at the end of this month. I also explained about how I would be mostly working at home but would occasionally need transport to go to what you might call Company Headquarters, in order to be shown how to do things, or given materials to work with, or to speak to my manager in person. So instead of being approved for "up to 10 journeys a week" (eg five trips To and five trips From work) like I am for my main job, I've been approved for "up to 104 journeys a year", which on average is a To and a From each week, but acknowledges that my working pattern is very, very flexible.
I had a second attempt at the chocolate cornflake cakes, this time using proper dark cooking chocolate. It worked much better than my Galaxy/cocoa powder/water combination. I'd show you a picture, but we ate most of them at knitting night. It probably would have been all of them but we felt we should save one or two for Steve. I would like to thank the ladies for sincerely congratulating me on my achievement without any sniggering.
I got my Direct Payments Monitoring Return completed and sent off. The stamped printout of the transactions for the period covered by the missing statement never did arrive - no idea whether that's the fault of the bank, or the fault of the Royal Mail, although I know which I think is more likely - so instead I made copies of the wage slip and BACS slip for that month and added a post-it note explaining that the statement was lost in the post, but this is what went in and out of the account and look, it tallies up with the end balance on the previous statement and the start balance on the next one. I'm sure they'll contact me if that isn't good enough.
So yeah, all in all I was feeling pretty proud of myself for keeping on top of it all and having everything ticking over.
And then the rain came down.
In among the self-perpetuating drizzle of increased pain levels because of the damp and cold, and grottiness because of increased painkiller side-effects, and getting frustrated and stressed because the grottiness makes it hard to think and the pain makes it hard for me to move so I can't DO things, and extra pain because the stress makes me tense, round and round and round, are a couple of real thunderclouds.
Firstly, my PA told me of a couple of issues that may affect her ability to work for me. I respect her confidentiality as I expect her to respect mine, so all I'll say on that front is: she's a great PA, I'm happy employing her, she's happy working for me, and it isn't anything that either of us have "done wrong", it's just one of those things. But what I can say is that, as an employer, I'm having to increase the gradient of my learning curve to perilously steep levels in order to keep up with what our respective rights and responsibilities are in this situation. I'm also having to spend a few extra hours on the phone and having meetings during the daytime, which interferes with my ability to save enough spoons for work.
Secondly, it's DLA time again. The form is a new one - shaved down to 40 pages of personal and depressing questions rather than the 50+ it was previously - but from what I can see, this has mostly been achieved by trimming down the spaces given for the non-tick-box questions. For instance, the question about help needed to take part in "hobbies, interests, social or religious activities" used to be close on three pages. Now, they provide two 5cmx16cm boxes, one for activities at home, one for activities when you go out. Which I guess is more than adequate if you don't need much help, but if you don't need much help, why would you be applying for DLA?
So Monday evening will be spent trying to contact the Citizens Advice Bureau by telephone (the local CAB is only manned four days a week, for five hours at a time, most of which I am at work). I'm hoping my combination of disability and having a job will be enough for them to allow me to make an appointment. Obviously I'll have to take time off work for such an appointment, but it would still be much better for me than the usual process where you go to the office and sit in the waiting room for however many hours it takes until someone becomes available, and if they don't become available, you come back the next day. It's not the fault of the CAB, who are staffed by volunteers and chronically underfunded for the amount of support they are meant to provide. But it does make it that little bit more inaccessible for those who need it, and it's another thing that shouldn't be soaking up my limited annual leave allowance.
Every time, this makes me angry. Services and support tend to assume a disabled person has an infinite amount of spare time, energy, money, learning capacity, and administrative ability at their fingertips. Get off benefit! Go to work! Squeeze all this crud in on top! How?
Thursday, September 24, 2009
Customer Service
Slightly alarming letter from Social Services today, telling me that my Direct Payments Monitoring Return had been due at the end of July and that if I did not submit it within 14 days I would be in Trouble.
Quick call to the office who sent the letter, turns out it's a form that I have to send in with some bank statements and whatnot, to show that I am properly using the Direct Payments money. They sent it to me at the beginning of June. It didn't arrive. Happily, they believed me that it didn't arrive and are going to send another copy.
Much relieved, I decided to pull out my big Social Services folder (when you have brainfog but have to deal with reams of paperwork for government organisations, you develop excellent administrative habits) to make sure that I had all the bank statements and timesheets and suchlike to hand. I felt happy and confident in my filing system - all the bits of paper were grouped together in their little sections, and in date order within those sections - when I spotted alarm bell number two. One of the statements was missing. The one that would have been sent at... can you guess?... the beginning of June.
I'm not even going to bother with a rant about Royal Mail. There is a persistent problem here with mail (particularly birthday cards) not arriving, packages being left unattended on the doorstep, you name it, and all we ever get told is that nothing can or will be done unless the item of mail was sent by a Signed For or Special Delivery service and we are able to get the sender to provide the receipt for this service.
What I am going to do, is praise the customer service of the bank. I phoned the local branch. A person picked up within a few rings, no automated system. The person spoke good English and offered me two options - I could have a printout of the transactions for the missing period sent for free, or I could have a duplicate statement sent, but that would cost £5. I explained what I needed it for and asked what she thought I should do. She offered that she could send the printout, free, but stamp it with the bank stamp and the date stamp, and then if Social Services said that wasn't good enough, then I could pay the fee and get a 'proper' statement. Whole conversation took less than five minutes. Hurrah.
Quick call to the office who sent the letter, turns out it's a form that I have to send in with some bank statements and whatnot, to show that I am properly using the Direct Payments money. They sent it to me at the beginning of June. It didn't arrive. Happily, they believed me that it didn't arrive and are going to send another copy.
Much relieved, I decided to pull out my big Social Services folder (when you have brainfog but have to deal with reams of paperwork for government organisations, you develop excellent administrative habits) to make sure that I had all the bank statements and timesheets and suchlike to hand. I felt happy and confident in my filing system - all the bits of paper were grouped together in their little sections, and in date order within those sections - when I spotted alarm bell number two. One of the statements was missing. The one that would have been sent at... can you guess?... the beginning of June.
I'm not even going to bother with a rant about Royal Mail. There is a persistent problem here with mail (particularly birthday cards) not arriving, packages being left unattended on the doorstep, you name it, and all we ever get told is that nothing can or will be done unless the item of mail was sent by a Signed For or Special Delivery service and we are able to get the sender to provide the receipt for this service.
What I am going to do, is praise the customer service of the bank. I phoned the local branch. A person picked up within a few rings, no automated system. The person spoke good English and offered me two options - I could have a printout of the transactions for the missing period sent for free, or I could have a duplicate statement sent, but that would cost £5. I explained what I needed it for and asked what she thought I should do. She offered that she could send the printout, free, but stamp it with the bank stamp and the date stamp, and then if Social Services said that wasn't good enough, then I could pay the fee and get a 'proper' statement. Whole conversation took less than five minutes. Hurrah.
Wednesday, September 09, 2009
Second Job
Yes, that's right, in these darkened times when there are many more jobseekers than jobs available, I'm being a greedy git and deciding to have TWO at once.
Okay, so they're both part time - the existing one at 17.5 hours a week and the new one at somewhere between "a couple" and "a few" hours - and even the combined pay wouldn't be enough to lift anyone without financial support from a partner out of benefits dependency - but nevertheless.
As you've probably guessed, precise details are at a hazy stage with a start date of "once the paperwork's done", but I've filled in my bit of a P46 and been shown around the system I'll be using so I don't think I'm jumping the gun in considering the job to be a definite thing.
It's very flexible and it's mostly working from home, data entry and envelope stuffing and suchlike, which is why I'm able to take it on. There's no way I could do more hours in my main job, since by the time I crawl into my taxi at the end of an afternoon I am utterly shattered, barely capable of talking, and wincing at every pothole and speedbump on the way home. But the idea with the new job is that once I've got home and had a couple of hours to rest and get a bit of dinner inside me, then if I feel up to it I'll be able to sit up and do anything between twenty minutes and two hours of additional work. And if I don't feel up to it, or if I have something else to do, then I won't. I can stop the clock for a break whenever I need to, and I can take that break in the quiet and comfort of my own home which is so much more effective than trying to screen out the noise and busy-ness of a hectic office. I won't have to force myself to keep going until a taxi arrives, either, which will be nice.
Of course, the first person I called to tell was my mother... of course, her immediate reaction was a comparison to Sister Dearest and her Fabulous Career*. Admittedly I know by now that any phone call to my mother has to include several minutes listening to the praises of SD and her FC being sung, but on this one occasion I really could have done without it - I wanted to play the game where we at least pretend to be proud/congratulatory/encouraging of my hard work and minor accomplishments.
Happily, Steve and my friends are more than capable of bolstering my self esteem when it flags and did a sterling job of being pleased for me. Even my current boss congratulated me, once I'd assured him that it was a second job and I wouldn't be leaving his company (his immediate reaction in the seconds before I'd fully explained that bit thoroughly reassured me that I am valued within the workplace).
I've got a desk set up at home now, complete with two desk tidys, a coaster, and my Sunshine Buddy. I have a wireless mouse but I need a mousemat as it's a glass-topped desk. Well, I say need, it's possible to get by just using a bit of paper. But I'd like a proper mousemat. In fact in an ideal world, I'd like to try one of those ones with a padded bit for your wrist but they seem a bit pricey and I'm not sure how much difference they make. If anyone has any input I'll be happy to hear it.
Access to Work are being their usual cagey selves - you can't determine what help you may or may not be able to get through them until you're fully signed up to the job, have a start date, and have completed an application for support - but I've been told that I am "eligible to apply" for support with this job as well, and have two separate support packages running concurrently, although they'll probably be handled by the same person. I'm hoping to get the same deal on transport (I'll be working from home but I will have to go in every so often) where I pay an amount equivalent to a bus fare, and AtW top it up to a taxi fare because I can't use a bus. Equipment-wise, I'll need to have a good think - as a rule, they'll provide anything that is (a) to be used solely by me, AND (b) an item or a specific version of an item needed because of disability-related reasons. So for instance they won't supply biros but they might supply any of these for someone who has trouble with their hands. Ideas?
* Fabulous Career = working for several large national chains of bookies, encouraging gambling addicts to indulge their addictive behaviour. Since she falls in the narrow margin where she can write her own name but is unable/disinclined to get a different job, she has over the course of several years worked her way up to local management. While I realise I'm hardly a high-flyer myself, I can't get quite as excited and impressed by this as my mother seems to.
Okay, so they're both part time - the existing one at 17.5 hours a week and the new one at somewhere between "a couple" and "a few" hours - and even the combined pay wouldn't be enough to lift anyone without financial support from a partner out of benefits dependency - but nevertheless.
As you've probably guessed, precise details are at a hazy stage with a start date of "once the paperwork's done", but I've filled in my bit of a P46 and been shown around the system I'll be using so I don't think I'm jumping the gun in considering the job to be a definite thing.
It's very flexible and it's mostly working from home, data entry and envelope stuffing and suchlike, which is why I'm able to take it on. There's no way I could do more hours in my main job, since by the time I crawl into my taxi at the end of an afternoon I am utterly shattered, barely capable of talking, and wincing at every pothole and speedbump on the way home. But the idea with the new job is that once I've got home and had a couple of hours to rest and get a bit of dinner inside me, then if I feel up to it I'll be able to sit up and do anything between twenty minutes and two hours of additional work. And if I don't feel up to it, or if I have something else to do, then I won't. I can stop the clock for a break whenever I need to, and I can take that break in the quiet and comfort of my own home which is so much more effective than trying to screen out the noise and busy-ness of a hectic office. I won't have to force myself to keep going until a taxi arrives, either, which will be nice.
Of course, the first person I called to tell was my mother... of course, her immediate reaction was a comparison to Sister Dearest and her Fabulous Career*. Admittedly I know by now that any phone call to my mother has to include several minutes listening to the praises of SD and her FC being sung, but on this one occasion I really could have done without it - I wanted to play the game where we at least pretend to be proud/congratulatory/encouraging of my hard work and minor accomplishments.
Happily, Steve and my friends are more than capable of bolstering my self esteem when it flags and did a sterling job of being pleased for me. Even my current boss congratulated me, once I'd assured him that it was a second job and I wouldn't be leaving his company (his immediate reaction in the seconds before I'd fully explained that bit thoroughly reassured me that I am valued within the workplace).
I've got a desk set up at home now, complete with two desk tidys, a coaster, and my Sunshine Buddy. I have a wireless mouse but I need a mousemat as it's a glass-topped desk. Well, I say need, it's possible to get by just using a bit of paper. But I'd like a proper mousemat. In fact in an ideal world, I'd like to try one of those ones with a padded bit for your wrist but they seem a bit pricey and I'm not sure how much difference they make. If anyone has any input I'll be happy to hear it.
Access to Work are being their usual cagey selves - you can't determine what help you may or may not be able to get through them until you're fully signed up to the job, have a start date, and have completed an application for support - but I've been told that I am "eligible to apply" for support with this job as well, and have two separate support packages running concurrently, although they'll probably be handled by the same person. I'm hoping to get the same deal on transport (I'll be working from home but I will have to go in every so often) where I pay an amount equivalent to a bus fare, and AtW top it up to a taxi fare because I can't use a bus. Equipment-wise, I'll need to have a good think - as a rule, they'll provide anything that is (a) to be used solely by me, AND (b) an item or a specific version of an item needed because of disability-related reasons. So for instance they won't supply biros but they might supply any of these for someone who has trouble with their hands. Ideas?
* Fabulous Career = working for several large national chains of bookies, encouraging gambling addicts to indulge their addictive behaviour. Since she falls in the narrow margin where she can write her own name but is unable/disinclined to get a different job, she has over the course of several years worked her way up to local management. While I realise I'm hardly a high-flyer myself, I can't get quite as excited and impressed by this as my mother seems to.
Thursday, August 06, 2009
DLA and AA under threat
Yesterday Benefits and Work released some rather alarming news about the proposed axing of "disability benefits", such as DLA and AA. To bring all readers up to speed:
DLA is Disability Living Allowance. This is money paid to disabled people to help cover the additional living costs they face due to disability. It has a Mobility component and a Care component. These are paid at fixed rates (high or low rate Mobility, and high, middle, or low rate Care).
AA is Attendance Allowance. This is sort of like DLA for people over 65, but it is not split into care and mobility - there's just a single high or low rate.
Neither benefit is means-tested for the simple reason that being disabled is expensive regardless of what other income you have. If you work your backside off and earn £20k, you deserve to be able to live the life of someone earning £20k - not to be struggling along in the lifestyle of someone on £12k because you have to shell out a small fortune for absolutely essential, non-negotiable disability expenses. You shouldn't be rendered ineligible for help with these essential expenses because you've had the gall to do things like get a mortgage to buy a house, or put a bit of money in an ISA for a rainy day, rather than spending all your money as it comes in.
Neither benefit is counted as income for means-tested benefit assessments, because the money is given because of additional disability-related expenses, the sort of things where the individual can't choose to save a bit of money by going without.
No one is immune from disability or old age. These issues might not affect you today, but chances are they will affect you at some point, particularly if you plan to live past 65.
All up to speed? Then I'll continue.
The reason DLA and AA are given as money and don't require receipts and suchlike to prove how the money was spent, is because of the huge diversity of disabilities and living conditions it covers, and because the expenses don't always work out that neatly.
Let's explore an example: grocery shopping. I have to pay more for my grocery shopping than an able-bodied person.
First of all, I have to pay for home delivery. I rarely have the spoons to manage to get all the way around a busy, bright, noisy, complicated supermarket, even with a mobility scooter - much less to then be able to get myself and my shopping home, and then immediately put it all away as well. To someone with a condition that makes moving about painful, who has difficulty lifting and carrying, who becomes tired very quickly, or who is easily confused, that's a triathlon.
Second, I have to pay to be able to access home delivery. That means an internet connection and a usable computer, repairs and replacements as necessary. Of course I use the internet and the computer for all sorts of things, essential and otherwise. How on earth would we calculate how much of it is a disability-related expense?
Third, I cannot save money on shopping around. Home delivery usually has a minimum spend. Every week, leaflets of special offers from the main supermarkets come through my door, but I don't have an option to get £10 of food from ASDA and £10 from Tesco and £15 from Sainsburys. I have to pick one shop. I cannot pick the cheapest shops, such as Aldi or Lidl, because they do not deliver.
Fourth, shopping online I cannot take advantage of the "benefits buffet", the items that have been reduced in price in-store because they're almost out of date, or because the packaging's been a bit squashed. It used to be a core money-saver - on my walk home from work, I'd wander into the supermarket and pick up something half-price for that night's dinner...
I had typed as far as my ninth point before I realised I'd gone a bit off course and deleted most of it. Hopefully I've demonstrated my point: disability-related expenses crop up in unusual ways and aren't always possible to calculate - which is why getting DLA or AA in the form of extra money to be spent at the claimants' discretion is utterly invaluable.
This will Not Be A Good Thing.
Worse, they intend to give the funding and responsibility to Social Services instead. The examples of Social Services that are unable to find their backsides with both hands and a map are myriad, but even if we were to grant them the impossible benefit of the doubt and assume that they ran it fairly and smoothly... this change can only mean less autonomy and more paperwork for elderly and disabled people who are not always in a position to be able to deal with it, as they attempt to document and justify every disability-related expense that the local authority will permit (and struggle with the ones they won't acknowledge).
Please, join the campaign at Benefits and Work.
DLA is Disability Living Allowance. This is money paid to disabled people to help cover the additional living costs they face due to disability. It has a Mobility component and a Care component. These are paid at fixed rates (high or low rate Mobility, and high, middle, or low rate Care).
AA is Attendance Allowance. This is sort of like DLA for people over 65, but it is not split into care and mobility - there's just a single high or low rate.
Neither benefit is means-tested for the simple reason that being disabled is expensive regardless of what other income you have. If you work your backside off and earn £20k, you deserve to be able to live the life of someone earning £20k - not to be struggling along in the lifestyle of someone on £12k because you have to shell out a small fortune for absolutely essential, non-negotiable disability expenses. You shouldn't be rendered ineligible for help with these essential expenses because you've had the gall to do things like get a mortgage to buy a house, or put a bit of money in an ISA for a rainy day, rather than spending all your money as it comes in.
Neither benefit is counted as income for means-tested benefit assessments, because the money is given because of additional disability-related expenses, the sort of things where the individual can't choose to save a bit of money by going without.
No one is immune from disability or old age. These issues might not affect you today, but chances are they will affect you at some point, particularly if you plan to live past 65.
All up to speed? Then I'll continue.
The reason DLA and AA are given as money and don't require receipts and suchlike to prove how the money was spent, is because of the huge diversity of disabilities and living conditions it covers, and because the expenses don't always work out that neatly.
Let's explore an example: grocery shopping. I have to pay more for my grocery shopping than an able-bodied person.
First of all, I have to pay for home delivery. I rarely have the spoons to manage to get all the way around a busy, bright, noisy, complicated supermarket, even with a mobility scooter - much less to then be able to get myself and my shopping home, and then immediately put it all away as well. To someone with a condition that makes moving about painful, who has difficulty lifting and carrying, who becomes tired very quickly, or who is easily confused, that's a triathlon.
Second, I have to pay to be able to access home delivery. That means an internet connection and a usable computer, repairs and replacements as necessary. Of course I use the internet and the computer for all sorts of things, essential and otherwise. How on earth would we calculate how much of it is a disability-related expense?
Third, I cannot save money on shopping around. Home delivery usually has a minimum spend. Every week, leaflets of special offers from the main supermarkets come through my door, but I don't have an option to get £10 of food from ASDA and £10 from Tesco and £15 from Sainsburys. I have to pick one shop. I cannot pick the cheapest shops, such as Aldi or Lidl, because they do not deliver.
Fourth, shopping online I cannot take advantage of the "benefits buffet", the items that have been reduced in price in-store because they're almost out of date, or because the packaging's been a bit squashed. It used to be a core money-saver - on my walk home from work, I'd wander into the supermarket and pick up something half-price for that night's dinner...
I had typed as far as my ninth point before I realised I'd gone a bit off course and deleted most of it. Hopefully I've demonstrated my point: disability-related expenses crop up in unusual ways and aren't always possible to calculate - which is why getting DLA or AA in the form of extra money to be spent at the claimants' discretion is utterly invaluable.
The Shaping the Future of Care Green Paper published by the DWP and the Department of Health on 14th July sets out government plans to get rid of attendance allowance and, depending on public reaction, also leaves the way clear to end the care component of DLA.
This will Not Be A Good Thing.
Worse, they intend to give the funding and responsibility to Social Services instead. The examples of Social Services that are unable to find their backsides with both hands and a map are myriad, but even if we were to grant them the impossible benefit of the doubt and assume that they ran it fairly and smoothly... this change can only mean less autonomy and more paperwork for elderly and disabled people who are not always in a position to be able to deal with it, as they attempt to document and justify every disability-related expense that the local authority will permit (and struggle with the ones they won't acknowledge).
Please, join the campaign at Benefits and Work.
Thursday, February 12, 2009
Two Ticks
At this time of economic gloom and woe, I am almost embarrassed to report I have landed another job interview.
I am confident that I deserve this interview as I wrote (well, typed, thanks to the accessible glory that is an online application) next to every disability-linked question and every 'if you are shortlisted for interview'-linked question that I was NOT requesting an interview under the Two Ticks scheme* and did NOT want to be shortlisted on the basis of my disability.
My only concern is taking the time off from my existing job to attend the interview, as it's on a day when we tend to be both busy and understaffed at the best of times. I'll have a word with my manager today. I suspect I'll end up stashing jeans and trainers at work the day before, so that I can go in straight from interview and change out of my suit there.
I realise this is really quite a smug position to be in.
*The Two Ticks Scheme
This is a scheme that quite a few large employers sign up to, recognisable by a symbol of two ticks encircled by the tagline "positive about disabled people". The part of it that is relevant here is a pledge that if a disabled candidate has shown on their application that they meet the minimum stated requirements for a job, that candidate gets an automatic interview. This helps, because a lot of disabled people wouldn't make the first cut due to things like:
- one or more long periods of unemployment
- previous employment mostly in an entirely different field
- an unusual pattern of education
- employer prejudices
... the idea being that once a person is in an interview setting, they can better explain and show how they are the right person for the job, how their nonstandard CV is proof of their ability to adapt to situations and overcome obstacles, how they are pleasant and competent individuals who will be an asset rather than a burden to the existing team, and so on. Or indeed not, as the case may be. Either way, the person gets interview practice, hopefully some interview feedback so that they have an idea where they should improve things, and a greater chance of getting a job when their CV might otherwise have gone straight into the bin.
Which is all great, but there's a flipside. Going to an interview takes up time, energy, and money, three things that your average disabled job applicant is not rolling in. You have to get your suit cleaned and your shirt ironed, you have to research the company, practise some answers for likely questions, arrange for a lift or pay for the taxis there and back, you have to deal with spending the 24 hours beforehand feeling utterly queasy with nerves.
If you already work, then it's even worse. You have to have that uncomfortable little discussion with your boss that (s)he might be about to get asked for a reference. You have to worry about whether the knowledge that you applied for another job is going to adversely affect you when it comes to managerial decisions about promotions or redundancies or pay cuts. You have to book time off work, and if that's not possible and the interviewers can't offer a different day, you have to start weighing up abandoning the interview vs throwing a sickie...
All of which might very well be worth it, if there's a genuine chance of getting a decent job at the end of it.
Unfortunately for a Two Ticks candidate, a job will (and must, and should) always go to the person most competent to do that job. If you meet the minimum criteria and turn up for a Two Ticks interview, and five other people (disabled or otherwise) are being interviewed who meet and exceed the maximum criteria, well, you're never going to get that job.
Also unfortunately, nepotism is alive and well and probably always will be. I have seen a couple of jobs where the position was publicly advertised (because it's a requirement of the company policy), the disabled candidates were interviewed (because it's a requirement of the Two Ticks scheme), and then everybody had to try and not look surprised when the position went to, at best, an internal candidate, and at worst, the repugnant offspring of the managing director.
In such situations, the Two Ticks candidate has NO chance of getting the job. All (s)he gets is a lot of expense and hassle and a smidgen of interview experience. Which is fine if interview experience is what you want... but personally, I'd rather only attend interviews where I know I have a reasonable chance of being the one who gets the job.
Edited for grammar 22:27 12/02/09
I am confident that I deserve this interview as I wrote (well, typed, thanks to the accessible glory that is an online application) next to every disability-linked question and every 'if you are shortlisted for interview'-linked question that I was NOT requesting an interview under the Two Ticks scheme* and did NOT want to be shortlisted on the basis of my disability.
My only concern is taking the time off from my existing job to attend the interview, as it's on a day when we tend to be both busy and understaffed at the best of times. I'll have a word with my manager today. I suspect I'll end up stashing jeans and trainers at work the day before, so that I can go in straight from interview and change out of my suit there.
I realise this is really quite a smug position to be in.
*The Two Ticks Scheme
This is a scheme that quite a few large employers sign up to, recognisable by a symbol of two ticks encircled by the tagline "positive about disabled people". The part of it that is relevant here is a pledge that if a disabled candidate has shown on their application that they meet the minimum stated requirements for a job, that candidate gets an automatic interview. This helps, because a lot of disabled people wouldn't make the first cut due to things like:
- one or more long periods of unemployment
- previous employment mostly in an entirely different field
- an unusual pattern of education
- employer prejudices
... the idea being that once a person is in an interview setting, they can better explain and show how they are the right person for the job, how their nonstandard CV is proof of their ability to adapt to situations and overcome obstacles, how they are pleasant and competent individuals who will be an asset rather than a burden to the existing team, and so on. Or indeed not, as the case may be. Either way, the person gets interview practice, hopefully some interview feedback so that they have an idea where they should improve things, and a greater chance of getting a job when their CV might otherwise have gone straight into the bin.
Which is all great, but there's a flipside. Going to an interview takes up time, energy, and money, three things that your average disabled job applicant is not rolling in. You have to get your suit cleaned and your shirt ironed, you have to research the company, practise some answers for likely questions, arrange for a lift or pay for the taxis there and back, you have to deal with spending the 24 hours beforehand feeling utterly queasy with nerves.
If you already work, then it's even worse. You have to have that uncomfortable little discussion with your boss that (s)he might be about to get asked for a reference. You have to worry about whether the knowledge that you applied for another job is going to adversely affect you when it comes to managerial decisions about promotions or redundancies or pay cuts. You have to book time off work, and if that's not possible and the interviewers can't offer a different day, you have to start weighing up abandoning the interview vs throwing a sickie...
All of which might very well be worth it, if there's a genuine chance of getting a decent job at the end of it.
Unfortunately for a Two Ticks candidate, a job will (and must, and should) always go to the person most competent to do that job. If you meet the minimum criteria and turn up for a Two Ticks interview, and five other people (disabled or otherwise) are being interviewed who meet and exceed the maximum criteria, well, you're never going to get that job.
Also unfortunately, nepotism is alive and well and probably always will be. I have seen a couple of jobs where the position was publicly advertised (because it's a requirement of the company policy), the disabled candidates were interviewed (because it's a requirement of the Two Ticks scheme), and then everybody had to try and not look surprised when the position went to, at best, an internal candidate, and at worst, the repugnant offspring of the managing director.
In such situations, the Two Ticks candidate has NO chance of getting the job. All (s)he gets is a lot of expense and hassle and a smidgen of interview experience. Which is fine if interview experience is what you want... but personally, I'd rather only attend interviews where I know I have a reasonable chance of being the one who gets the job.
Edited for grammar 22:27 12/02/09
Thursday, November 13, 2008
Did you ever have a couple of days when things just went... right?
It started on Tuesday, worryingly enough with the laundry. Anyone without a tumble drier will understand where I'm coming from - I have enough space to hang up to dry all the clothes that I wash, but the things like towels and sheets cause a bit more of a problem unless you (1) don't care about your heating bill, (2) have the space and strength to wrangle with acres of heavy, damp cloth and (3) don't mind a climate inside your house that is similar in heat and humidity to a tropical rainforest.
So I decided that a graceful admission of defeat was called for, and looked into laundry services. I knew of service washes and I figured that although taxis to and from a laundrette would be expensive, it would get it done, one-off expense, and that would be that. So I made some phone calls.
Ten minutes later and an arrangement had been made for someone to come to the house after I'd got home from work, collect two black bin-liners full of laundry, and bring the contents back, clean and dry, at the same time the following day. Simplicity itself.
Off to work, where I had a busy and productive but thankfully not too awfully hectic afternoon. More and more Christmas-themed things are being ordered. At the end of the afternoon, I finished everything that wanted doing, made my way down the stairs, and reached the bottom just as my cab arrived to take me home.
At home I relaxed for half an hour, then a polite young man collected my laundry, then about ten minutes after that Steve got home, bearing fish and chips. Delicious. That consumed, it was time to go to knitting group for the rest of the evening, where I had a great time chatting with my friends and making steady progress with my current project (Christmas present, sorry). A couple of hours later Steve came to take me home and then I snuggled into bed with a heat pack and a good book. Hot chocolate was offered, but I didn't think I'd stay awake long enough to drink it.
You'd think it couldn't really get much better, and so I may have approached Wednesday with some trepidation. Wednesday, being my day off work, has a horrible tendency to become a Busy Day as I cram in all the stuff I haven't been able to do during the week (I'm home in the mornings, but I can't go out and get stuff done as I have to save my spoons to be able to go to work). This week was looking particularly harsh as it was going to entail a trip into town which is sometimes a real adventure. I braced myself and called Shopmobility to check availability of scooters (I didn't have the spoons to drive my own all the way into town and back) - no problem, a scooter will be ready and waiting. Called a taxi to take me into town, taxi was outside my front door within five minutes.
It was like falling through a door that you expect to be heavy and then someone on the other side opens it before you realise.
First task was to go to the post office to post a thank-you present to the charity which supported me with my DLA appeal. There was no queue, just straight to the desk and sorted.
Second task was to go to the building society to transfer the big lump of DLA back-pay (the money they should have paid me over the nine months leading up to the appeal) into my ISA. No problems whatsoever.
Third task was to go to Boots and fill my prescription. A fifteen minute wait was about normal, I sat and relaxed for some of it and got a bit more knitting done with the rest. The pharmacist was thoughtful enough to bring the bag over to where I was sitting rather than shouting to me, which was nice.
Finally, I had to go to a bank to set up a new account in order to use Direct Payments to hire a Personal Assistant for a few hours a week as per my Social Services assessment. It must be a new and separate bank account so that the payments are transparent.
To briefly explain: DLA is money I get in recognition of the fact that I have various additional expenses due to my disability. I get £46.75 a week for Mobility. But no one cares whether I use it all for taxis, or whether I use some of it to repay friends directly or indirectly for giving me lifts, or whether I count shopping delivery charges, or whether I blow it all on cat food. It's up to me how I spend it - or indeed if I save it. Direct Payments, however, is more like reimbursement of a Personal Assistant's wages. So I will hire my Personal Assistant and I will pay them, and Social Services will give me the money to pay them. However, all of this money must be directly accounted for. If I've been granted 10 hours of care, but I only use a PA for 5 hours, then I will only get the payments to cover 5 hours of care. So there has to be a dedicated bank account for these payments to make sure everyone involved can easily keep track of what money should be and is going in and out at any given time.
The whole thing is a bit chicken and egg, really - to get Direct Payments, I have to go into town and set up a bank account, but that's a major excursion for me, so really, I need Direct Payments to pay a PA to go into town with me to set up a bank account so I can get Direct Payments to pay a PA...
Anyway, it's a task I've been sitting on for a couple of months now, waiting for a day when I had enough spoons AND enough time AND during bank opening times, to be able to try and tackle it by myself. I admit, I was also a little anxious about whether a bank would let me open an account when I don't have a driver's licence or a passport, and I can't say how much money will be going in and out of the account, or when.
But today, ah, today I was charmed... I picked a bank on the basis of "first one I saw", mosied in, explained I wanted to open an account and was told someone would be with me shortly. Shortly enough, someone was with me, ushering me into a private room and offering me a hot drink. Opening an account? No problem! Your wages won't go into it? No problem! Chequebook, no fees, no problem! No passport or driver's licence? Well, I'm sure something in this sheaf of documentation you've brought along will suffice... WIN.
It got better. Steve came to meet me for ten minutes in his lunch break, which meant that not only did I get extra bonus hugs, but I also got to offload the enormous bag of medication which was starting to get in my way. I found a quiet restaurant with a decent lunch offer (a main course and a drink for £8.50) so I decided to treat myself. Then I started to make my way back to Shopmobility via a couple of shops and found (1) a nice top and (2) a book from a series I'm collecting which was reduced from £6.99 to 50p because the cover had got slightly torn. Dropped off the scooter and made my way to a nearby bakery where I had a cup of tea and a chocolate fudge brownie while waiting for a taxi to pick me up and take me home.
But we're not through yet! There was post waiting for me at home - I've been invited to another interview, which is nice, although I know better than to hold my breath. They want my permission to contact my current employer for a reference, which is fine, but I really should give my current boss a heads-up first.
And finally, to round it all off, the guy from the laundry brought back two big bags of nice, clean, dry, folded towels and bedclothes, and that was when I discovered that the price he'd quoted me wasn't per-bag but for the whole lot, so it only cost me half of what I was expecting! The amount of pain and hassle it saved me is phenomenal, so I expect I will be using that service a lot more in the future.
More days like this, please.
It started on Tuesday, worryingly enough with the laundry. Anyone without a tumble drier will understand where I'm coming from - I have enough space to hang up to dry all the clothes that I wash, but the things like towels and sheets cause a bit more of a problem unless you (1) don't care about your heating bill, (2) have the space and strength to wrangle with acres of heavy, damp cloth and (3) don't mind a climate inside your house that is similar in heat and humidity to a tropical rainforest.
So I decided that a graceful admission of defeat was called for, and looked into laundry services. I knew of service washes and I figured that although taxis to and from a laundrette would be expensive, it would get it done, one-off expense, and that would be that. So I made some phone calls.
Ten minutes later and an arrangement had been made for someone to come to the house after I'd got home from work, collect two black bin-liners full of laundry, and bring the contents back, clean and dry, at the same time the following day. Simplicity itself.
Off to work, where I had a busy and productive but thankfully not too awfully hectic afternoon. More and more Christmas-themed things are being ordered. At the end of the afternoon, I finished everything that wanted doing, made my way down the stairs, and reached the bottom just as my cab arrived to take me home.
At home I relaxed for half an hour, then a polite young man collected my laundry, then about ten minutes after that Steve got home, bearing fish and chips. Delicious. That consumed, it was time to go to knitting group for the rest of the evening, where I had a great time chatting with my friends and making steady progress with my current project (Christmas present, sorry). A couple of hours later Steve came to take me home and then I snuggled into bed with a heat pack and a good book. Hot chocolate was offered, but I didn't think I'd stay awake long enough to drink it.
You'd think it couldn't really get much better, and so I may have approached Wednesday with some trepidation. Wednesday, being my day off work, has a horrible tendency to become a Busy Day as I cram in all the stuff I haven't been able to do during the week (I'm home in the mornings, but I can't go out and get stuff done as I have to save my spoons to be able to go to work). This week was looking particularly harsh as it was going to entail a trip into town which is sometimes a real adventure. I braced myself and called Shopmobility to check availability of scooters (I didn't have the spoons to drive my own all the way into town and back) - no problem, a scooter will be ready and waiting. Called a taxi to take me into town, taxi was outside my front door within five minutes.
It was like falling through a door that you expect to be heavy and then someone on the other side opens it before you realise.
First task was to go to the post office to post a thank-you present to the charity which supported me with my DLA appeal. There was no queue, just straight to the desk and sorted.
Second task was to go to the building society to transfer the big lump of DLA back-pay (the money they should have paid me over the nine months leading up to the appeal) into my ISA. No problems whatsoever.
Third task was to go to Boots and fill my prescription. A fifteen minute wait was about normal, I sat and relaxed for some of it and got a bit more knitting done with the rest. The pharmacist was thoughtful enough to bring the bag over to where I was sitting rather than shouting to me, which was nice.
Finally, I had to go to a bank to set up a new account in order to use Direct Payments to hire a Personal Assistant for a few hours a week as per my Social Services assessment. It must be a new and separate bank account so that the payments are transparent.
To briefly explain: DLA is money I get in recognition of the fact that I have various additional expenses due to my disability. I get £46.75 a week for Mobility. But no one cares whether I use it all for taxis, or whether I use some of it to repay friends directly or indirectly for giving me lifts, or whether I count shopping delivery charges, or whether I blow it all on cat food. It's up to me how I spend it - or indeed if I save it. Direct Payments, however, is more like reimbursement of a Personal Assistant's wages. So I will hire my Personal Assistant and I will pay them, and Social Services will give me the money to pay them. However, all of this money must be directly accounted for. If I've been granted 10 hours of care, but I only use a PA for 5 hours, then I will only get the payments to cover 5 hours of care. So there has to be a dedicated bank account for these payments to make sure everyone involved can easily keep track of what money should be and is going in and out at any given time.
The whole thing is a bit chicken and egg, really - to get Direct Payments, I have to go into town and set up a bank account, but that's a major excursion for me, so really, I need Direct Payments to pay a PA to go into town with me to set up a bank account so I can get Direct Payments to pay a PA...
Anyway, it's a task I've been sitting on for a couple of months now, waiting for a day when I had enough spoons AND enough time AND during bank opening times, to be able to try and tackle it by myself. I admit, I was also a little anxious about whether a bank would let me open an account when I don't have a driver's licence or a passport, and I can't say how much money will be going in and out of the account, or when.
But today, ah, today I was charmed... I picked a bank on the basis of "first one I saw", mosied in, explained I wanted to open an account and was told someone would be with me shortly. Shortly enough, someone was with me, ushering me into a private room and offering me a hot drink. Opening an account? No problem! Your wages won't go into it? No problem! Chequebook, no fees, no problem! No passport or driver's licence? Well, I'm sure something in this sheaf of documentation you've brought along will suffice... WIN.
It got better. Steve came to meet me for ten minutes in his lunch break, which meant that not only did I get extra bonus hugs, but I also got to offload the enormous bag of medication which was starting to get in my way. I found a quiet restaurant with a decent lunch offer (a main course and a drink for £8.50) so I decided to treat myself. Then I started to make my way back to Shopmobility via a couple of shops and found (1) a nice top and (2) a book from a series I'm collecting which was reduced from £6.99 to 50p because the cover had got slightly torn. Dropped off the scooter and made my way to a nearby bakery where I had a cup of tea and a chocolate fudge brownie while waiting for a taxi to pick me up and take me home.
But we're not through yet! There was post waiting for me at home - I've been invited to another interview, which is nice, although I know better than to hold my breath. They want my permission to contact my current employer for a reference, which is fine, but I really should give my current boss a heads-up first.
And finally, to round it all off, the guy from the laundry brought back two big bags of nice, clean, dry, folded towels and bedclothes, and that was when I discovered that the price he'd quoted me wasn't per-bag but for the whole lot, so it only cost me half of what I was expecting! The amount of pain and hassle it saved me is phenomenal, so I expect I will be using that service a lot more in the future.
More days like this, please.
Wednesday, October 15, 2008
Remploy and MPs
Finally, a response regarding the Remploy problems. My MP referred the matter to Anne McGuire, the erstwhile Minister for Disabled People. The response consists of a letter from Anne McGuire to my MP regarding the matter (dated approximately two weeks before she was replaced by Jonathan Shaw), and a covering letter from my MP, as it went via his office.
As you'll see from that article, whilst in office Ms McGuire was all about welfare-to-work. And my MP is James Plaskitt, the Benefit Fraud Minister. Surely if anyone should be up in arms about a company like Remploy skewing the stats for disabled people entering employment, it's these two.
Oh dear. While I like having faith in humanity, and believe that people as individuals are generally good, fair, and basically nice, I really must stop being so naive as to extend this to politicians.
According to my MP, "It appears that there has been a genuine and unfortunate error in the handling of your case, for which Remploy and the Government offer their sincere apologies."
Not fifty quid, then. Nor any thanks for my honesty in not taking the money and running, or for alerting them to the problems. And I wonder, Mr Plaskitt, if you uncovered a Benefit Fraudster on the claimant side rather than the government side, would you let them off with "apologies"?
No. Even if a benefit claimant made a "genuine and unfortunate error", they'd be hounded through the courts and at the very least, be required to pay back the funds which they had received on the basis of the erroneous information.
The letter from Ms McGuire was a little more illuminating. Sort of. I'm not going to reproduce any of it here as it's full of management gibberish and unashamed weasel-speak, but ten years as a fan of Dilbert has enabled me to boil it down and so I present the basic content in English.
1. Contacting me: Oops.
2. Only sending the signature pages: Oops.
3. Wrong dates: Oops.
4. Telephone call: Oops.
It seems Remploy contacted a whole list of clients to try and get them onto the Workstep programme. The list contained the details of 16 people, myself included, who should not have been on the list. No one noticed until I spoke up. The other 15 are being 'reviewed'.
For each point there's a lot of meaningless flannel about "ongoing continuous improvement programme" and references to undefined "additional measures" which will be put in place. Oops is about the size of it, though.
As for the '£50 for returning some forms' business: apparently £50 is considered a perfectly reasonable "incentive" for people to return information. Neither Remploy, nor the DWP, nor the wider government see anything dodgy about that at all. My apologies to Wat Tyler and Dr Crippen.
As you'll see from that article, whilst in office Ms McGuire was all about welfare-to-work. And my MP is James Plaskitt, the Benefit Fraud Minister. Surely if anyone should be up in arms about a company like Remploy skewing the stats for disabled people entering employment, it's these two.
Oh dear. While I like having faith in humanity, and believe that people as individuals are generally good, fair, and basically nice, I really must stop being so naive as to extend this to politicians.
According to my MP, "It appears that there has been a genuine and unfortunate error in the handling of your case, for which Remploy and the Government offer their sincere apologies."
Not fifty quid, then. Nor any thanks for my honesty in not taking the money and running, or for alerting them to the problems. And I wonder, Mr Plaskitt, if you uncovered a Benefit Fraudster on the claimant side rather than the government side, would you let them off with "apologies"?
No. Even if a benefit claimant made a "genuine and unfortunate error", they'd be hounded through the courts and at the very least, be required to pay back the funds which they had received on the basis of the erroneous information.
The letter from Ms McGuire was a little more illuminating. Sort of. I'm not going to reproduce any of it here as it's full of management gibberish and unashamed weasel-speak, but ten years as a fan of Dilbert has enabled me to boil it down and so I present the basic content in English.
1. Contacting me: Oops.
2. Only sending the signature pages: Oops.
3. Wrong dates: Oops.
4. Telephone call: Oops.
It seems Remploy contacted a whole list of clients to try and get them onto the Workstep programme. The list contained the details of 16 people, myself included, who should not have been on the list. No one noticed until I spoke up. The other 15 are being 'reviewed'.
For each point there's a lot of meaningless flannel about "ongoing continuous improvement programme" and references to undefined "additional measures" which will be put in place. Oops is about the size of it, though.
As for the '£50 for returning some forms' business: apparently £50 is considered a perfectly reasonable "incentive" for people to return information. Neither Remploy, nor the DWP, nor the wider government see anything dodgy about that at all. My apologies to Wat Tyler and Dr Crippen.
Wednesday, October 08, 2008
DLA Appeal
Appeal was today. It went well.
It was a bit daunting, but the panel made an effort to put me at my ease, asked sensible questions, and paid attention to my answers. I was able to answer all of the questions that were put to me, clearly and consistently. I also introduced the panel to Spoon Theory.
I got awarded High Rate Mobility and Low Rate Care, which is about right. We had thought I might get Middle Rate Care, but frankly I'm not going to argue about it. The award is backdated to February 2008 (which was when I applied) and is for two years from that date, until February 2010.
Absolutely knackered now.
It was a bit daunting, but the panel made an effort to put me at my ease, asked sensible questions, and paid attention to my answers. I was able to answer all of the questions that were put to me, clearly and consistently. I also introduced the panel to Spoon Theory.
I got awarded High Rate Mobility and Low Rate Care, which is about right. We had thought I might get Middle Rate Care, but frankly I'm not going to argue about it. The award is backdated to February 2008 (which was when I applied) and is for two years from that date, until February 2010.
Absolutely knackered now.
Friday, October 03, 2008
The Wibble
My Disability Living Allowance (DLA) appeal is next week.
In an organisational sense, I'm well prepared for it. Steve has managed to get a day off work in order to take me to and from the building where the appeal is being held. A person from the local Welfare Rights Advice Service is going to be there to represent me. The evidence I submitted is pretty substantial. I've reserved an accessible parking space at the venue, I've even decided roughly what I'm going to wear.
In a more personal sense, I'm not doing so badly either. I mean, I know my claim is genuine. I know that everything I have said on my forms is accurate. The absolute worst possible case scenario is that they turn me down and I have to continue living on exactly the same amount of money I am living on at the moment. Okay, it's not ideal, as it means I'm dependent on Steve's goodwill to continue to make up the shortfall between my wages and "survival" due to my disability-related expenses (which is what DLA is meant to cover and is why it is not means-tested), but at least I'm not currently likely to end up in a situation where I can't afford to eat because of benefit difficulties. This DLA appeal is not the end of the world.
But then there's the wibble. You know. The bit in each and every one of us that nags away at confidence, that says your date will be put off by that horrendous spot on your nose, or that reminds you in the night of that stupid thing you said at the interview...
The wibble, for me, is bypassing everything I academically know and understand about models of disability, everything I believe about how I am a useful member of society, doing a job, paying tax, helping and supporting my friends and loved ones and generally being just fine as a person. To prepare for the appeal I have to spend a lot of time concentrating on all the things I can't do, and this feeds the wibble.
The Wibble says to me,
"You're useless, you can't even walk around the block or work full-time or manage this or that or the other on your own.
If you win, well done! You've proved that you're useless! What a thing to prove! Wow, I bet you're proud.
But if you lose, you're still useless, in fact you're so useless, you've failed to prove you're useless! And you're going to have to carry on struggling without financial support to cover the additional expenses caused by your inability to do things..."
Yeah, I know, emo crap, call the waaaahmbulance, etc. I'm just stressed out to hell and can't wait for this to just be over, one way or the other.
In an organisational sense, I'm well prepared for it. Steve has managed to get a day off work in order to take me to and from the building where the appeal is being held. A person from the local Welfare Rights Advice Service is going to be there to represent me. The evidence I submitted is pretty substantial. I've reserved an accessible parking space at the venue, I've even decided roughly what I'm going to wear.
In a more personal sense, I'm not doing so badly either. I mean, I know my claim is genuine. I know that everything I have said on my forms is accurate. The absolute worst possible case scenario is that they turn me down and I have to continue living on exactly the same amount of money I am living on at the moment. Okay, it's not ideal, as it means I'm dependent on Steve's goodwill to continue to make up the shortfall between my wages and "survival" due to my disability-related expenses (which is what DLA is meant to cover and is why it is not means-tested), but at least I'm not currently likely to end up in a situation where I can't afford to eat because of benefit difficulties. This DLA appeal is not the end of the world.
But then there's the wibble. You know. The bit in each and every one of us that nags away at confidence, that says your date will be put off by that horrendous spot on your nose, or that reminds you in the night of that stupid thing you said at the interview...
The wibble, for me, is bypassing everything I academically know and understand about models of disability, everything I believe about how I am a useful member of society, doing a job, paying tax, helping and supporting my friends and loved ones and generally being just fine as a person. To prepare for the appeal I have to spend a lot of time concentrating on all the things I can't do, and this feeds the wibble.
The Wibble says to me,
"You're useless, you can't even walk around the block or work full-time or manage this or that or the other on your own.
If you win, well done! You've proved that you're useless! What a thing to prove! Wow, I bet you're proud.
But if you lose, you're still useless, in fact you're so useless, you've failed to prove you're useless! And you're going to have to carry on struggling without financial support to cover the additional expenses caused by your inability to do things..."
Yeah, I know, emo crap, call the waaaahmbulance, etc. I'm just stressed out to hell and can't wait for this to just be over, one way or the other.
Sunday, July 20, 2008
Things are going well
It's been a great week.
First of all, those persistent Unbloggables that have been filling up large parts of my headspace are now mostly resolved, and I wish I could explain better, but it's Someone Else's Business really.
Secondly, Steve's been paid, and while we're not buying a house/going on holiday/planning a wedding/bathing in Cristal just yet, the light at the end of the tunnel has proved to be sunshine rather than the oncoming train we feared. We have finally been able to make some headway on long-overdue essential expenses as well as a couple of little treats.
So thirdly, I finally have the Panda Silk I have been lusting after since Christmas. I wasn't going to get it yet - at £6.45 per 50g ball it's expensive and technically there are more important things we should be spending money on - but Steve knew I was after it, so when he knew he'd been paid, he got on the phone to Anna at Web of Wool and arranged with her that he would pay for four balls of Panda Silk, for me to choose the colours I wanted when I came in for knitting group. And lo, for Mary did SQUEEE quite a lot before choosing two balls of blue-ey "denim tones" which I think will become socks, and two balls of green-ey "fern tones" which might become a shawl - I'm feeling brave enough to make a careful attempt at lace knitting and I've found an allegedly simple pattern.
Fourthly, and still in the knitting theme, I have finished the knitting for my jumper. I plan to start sewing it up as soon as I've been able to run Bloop around a bit, which I can't do just yet because it's still a bit antisocially early for a Sunday morning.
Fifthly, although you just know I'm going to lose count soon... Remember Georgette the Courgette? Well, she grew and grew and grew some more until she was festooned with very definitely identifiable yellow courgette fruits. And at this point things went runny, because although 101 people have offered 101 recipes for courgette, my kitchen skills for things like safely peeling and chopping and dealing with hot pans and so on are HIGHLY limited, and Steve is suspicious of vegetables in general, and in particular, vegetables that don't even have the courtesy to be green (tomatoes are apparently excused on the basis of being a core component of ketchup).
Not wanting the courgettes to go to waste, I asked our next-door neighbour if she wanted them and invited her to help herself at any time. She seemed very pleased about this, and I was happy too because I like it when I feel like I live in a community, next thing I knew, she offered to put some into a lasagne for us! Which she did, and Steve and I ate it last night with some nice ciabatta bread, and it was delicious and we ate every bit.
uh...
Nextly, I've had the paperwork for my DLA appeal through. This means I've seen the GP's report (short but supportive) and feel confident that yes, the DWP have ignored vast chunks of evidence and the appeal has a good chance.
There is a slight question-mark over getting to the appeal though. It's in a large building (too large for walking, I'd need to be pushed in the wheelchair) in Birmingham (which is too far away for a taxi and community transport has to be pre-booked which wouldn't work for the way home as I don't know how long it will take). I'm not sure, but I really doubt that my representative from the Welfare Rights place is also going to be able to drive me there and back, not to mention sit with me, push the wheelchair, and be a shoulder to cry on if it all goes horribly wrong. Even if she could, it's not her job. Steve should be able to take me and if he can, it's all good, but we have this horror that he might not be able to - you only get 14 days notice of the Appeal date which might not be enough for him to get a day off work - and we don't know if we could find anyone else to help. So on Monday I'm calling the Welfare Rights organisation to see if they have any ideas. They must have experienced this before. Still, at least that'll be an end of it one way or another. Which is a Good Thing.
And Finally, it looks like we might be getting some help from Social Services. No word yet on what you might call Daily help, but apparently as Steve is my sole carer, we're eligible for an emergency scheme whereby if he's suddenly hospitalised or something, an emergency carer will come and "live-in" with me to fulfil his role for up to 72 hours until something more sustainable, such as a short stay in a residential home or additional visiting care, can be arranged. Certain amount of paperwork, but isn't there always.
First of all, those persistent Unbloggables that have been filling up large parts of my headspace are now mostly resolved, and I wish I could explain better, but it's Someone Else's Business really.
Secondly, Steve's been paid, and while we're not buying a house/going on holiday/planning a wedding/bathing in Cristal just yet, the light at the end of the tunnel has proved to be sunshine rather than the oncoming train we feared. We have finally been able to make some headway on long-overdue essential expenses as well as a couple of little treats.
So thirdly, I finally have the Panda Silk I have been lusting after since Christmas. I wasn't going to get it yet - at £6.45 per 50g ball it's expensive and technically there are more important things we should be spending money on - but Steve knew I was after it, so when he knew he'd been paid, he got on the phone to Anna at Web of Wool and arranged with her that he would pay for four balls of Panda Silk, for me to choose the colours I wanted when I came in for knitting group. And lo, for Mary did SQUEEE quite a lot before choosing two balls of blue-ey "denim tones" which I think will become socks, and two balls of green-ey "fern tones" which might become a shawl - I'm feeling brave enough to make a careful attempt at lace knitting and I've found an allegedly simple pattern.
Fourthly, and still in the knitting theme, I have finished the knitting for my jumper. I plan to start sewing it up as soon as I've been able to run Bloop around a bit, which I can't do just yet because it's still a bit antisocially early for a Sunday morning.
Fifthly, although you just know I'm going to lose count soon... Remember Georgette the Courgette? Well, she grew and grew and grew some more until she was festooned with very definitely identifiable yellow courgette fruits. And at this point things went runny, because although 101 people have offered 101 recipes for courgette, my kitchen skills for things like safely peeling and chopping and dealing with hot pans and so on are HIGHLY limited, and Steve is suspicious of vegetables in general, and in particular, vegetables that don't even have the courtesy to be green (tomatoes are apparently excused on the basis of being a core component of ketchup).
Not wanting the courgettes to go to waste, I asked our next-door neighbour if she wanted them and invited her to help herself at any time. She seemed very pleased about this, and I was happy too because I like it when I feel like I live in a community, next thing I knew, she offered to put some into a lasagne for us! Which she did, and Steve and I ate it last night with some nice ciabatta bread, and it was delicious and we ate every bit.
uh...
Nextly, I've had the paperwork for my DLA appeal through. This means I've seen the GP's report (short but supportive) and feel confident that yes, the DWP have ignored vast chunks of evidence and the appeal has a good chance.
There is a slight question-mark over getting to the appeal though. It's in a large building (too large for walking, I'd need to be pushed in the wheelchair) in Birmingham (which is too far away for a taxi and community transport has to be pre-booked which wouldn't work for the way home as I don't know how long it will take). I'm not sure, but I really doubt that my representative from the Welfare Rights place is also going to be able to drive me there and back, not to mention sit with me, push the wheelchair, and be a shoulder to cry on if it all goes horribly wrong. Even if she could, it's not her job. Steve should be able to take me and if he can, it's all good, but we have this horror that he might not be able to - you only get 14 days notice of the Appeal date which might not be enough for him to get a day off work - and we don't know if we could find anyone else to help. So on Monday I'm calling the Welfare Rights organisation to see if they have any ideas. They must have experienced this before. Still, at least that'll be an end of it one way or another. Which is a Good Thing.
And Finally, it looks like we might be getting some help from Social Services. No word yet on what you might call Daily help, but apparently as Steve is my sole carer, we're eligible for an emergency scheme whereby if he's suddenly hospitalised or something, an emergency carer will come and "live-in" with me to fulfil his role for up to 72 hours until something more sustainable, such as a short stay in a residential home or additional visiting care, can be arranged. Certain amount of paperwork, but isn't there always.
Saturday, June 21, 2008
Naughty Remploy
The other day, I got a letter from Remploy. Here's a direct quote, with my flags in brackets:
"To enable us to validate your employment status (1) we require further evidence of your registration and job start. Therefore, we are writing to ask you to sign the enclosed documentation (2)(3) and provide us with a copy of [list of documents such as my work contract, payslips, etc]....
... We understand the inconvenience this gives you and to address this, we will give you with a £50.00 giro (sic) on receipt of this pack/evidence." (4)
To take these flags one at a time:
(1) Validate my employment status? Why? With whom? What for? The only people who need to know about my employment status are the DWP (who know), the Inland Revenue (who know), and me and my employer (who definitely know). My work is valid, my tax is valid, my NI is valid, what other validation could I possibly need? And why have they dressed it up in officialspeak to make it sound like it's something important and necessary while conveying no useful information?
(2) The "enclosed documentation" consists only of the signature pages of several forms. I have the parts of the forms which say "I confirm the above information is correct" (a couple also specify that I understand that the information I give may be checked by the DWP) but I have no idea what the above information may or may not consist of. In other words, there is no opportunity for me to actually read what they are telling me to sign. What?!? How can a company whose raison d'etre is dealing with "vulnerable adults" possibly get away with encouraging people to sign things they have not read?
(3) The dates which have already been written into these signature pages are all "27/10/07". The Jobcentre DEA didn't even begin to refer me to Remploy until our sole meeting which was 3 days after that date - and Remploy didn't contact me until early December, by which time I was happily employed. In other words, they are encouraging me to falsify evidence which, if it is checked with the DWP, will be proven false. With my signature on it.
(4) Is it just me who thinks that £50 is rather a lot of recompense for the "inconvenience" of four signatures and a few bits of paper? Even if I had to hire someone to do it for me and sent it by courier, it wouldn't cost me anything like that. Given the extreme dodginess of the false dates and the not-enclosed documentation, one might even go so far as to consider the possibility (*avoids lawsuit*) that this may, by some people, be considered tantamount to a bribe for falsifying documentation...
With all this in mind, I decided to call Remploy to find out what the hell they thought they were playing at. After a short time, the woman whose name was on the letter phoned me back (woman? Yes. I should probably point out that to the best of my knowledge the male Remploy employee who was trying to help me find a way around the hours/NI problem a few weeks ago was not involved in this at all).
First she told me to just sign the boxes indicated and pop it all in the prepaid envelope and she'd take care of the rest, nothing to worry about, and then I'd get my £50.
I told her I understood that much, but before I started signing things, I wanted to know what it was that I was actually signing. She said they were just doing some admin for their own purposes, it's nothing I need to worry about, I just need to sign the forms, and they'll give me £50.
I asked why I was being asked to sign documents I had not been given to read, she said she was just trying to save on postage costs (they're offering £50 per person and they're worried about an extra 50p postage?!). By this time she was getting really annoyed with how awkward I was being and told me that if I was going to insist on being sent the full documents then she could do that, but really, there's no need, it's nothing I need to worry about, I just have to sign the forms and then they'll give me £50.
I told her that the dates were false. She tried to explain that they had to backdate things. I told her that her false dates could be easily proven false by the DWPs own records as they predated my original referral, and that I wasn't going to sign false documentation. At this point she changed tack to "okay, fine, don't sign the forms then. Just put them through a shredder and forget about it." I find it interesting that she specified that if I wasn't going to return the paperwork, I should destroy it. Maybe, despite her incredible lack of understanding of acceptable (never mind best) practice, she's really hot on data protection... or maybe she doesn't want me to show it to anyone. Oops.
She didn't seem to get that this sort of thing just wasn't on, or why I didn't want to participate, or why I felt organisations like Remploy should really know better.
£50 is a LOT of money to me (half a week's wages! more than a week's food!) and it really is quite difficult to effectively turn down free money. I suspect there will be others who have been sent this kind of letter who've decided that £50 is £50, and cheerfully signed away.
I don't want to have missed out for nothing. I have to do something with this, "alert the proper authorities" or similar, but I don't know where to start or who the proper authorities might be. Remploy, so far as I can ascertain, is government-owned and government-funded, and I don't know who they answer to or how to complain. I did ask about their internal complaints procedure and was told that a complaint would come straight back to that department to resolve - in other words, it wouldn't go any higher up the ladder and no one would be held accountable for bad practice.
I know I'm asking this a lot lately, but what would YOU do?
"To enable us to validate your employment status (1) we require further evidence of your registration and job start. Therefore, we are writing to ask you to sign the enclosed documentation (2)(3) and provide us with a copy of [list of documents such as my work contract, payslips, etc]....
... We understand the inconvenience this gives you and to address this, we will give you with a £50.00 giro (sic) on receipt of this pack/evidence." (4)
To take these flags one at a time:
(1) Validate my employment status? Why? With whom? What for? The only people who need to know about my employment status are the DWP (who know), the Inland Revenue (who know), and me and my employer (who definitely know). My work is valid, my tax is valid, my NI is valid, what other validation could I possibly need? And why have they dressed it up in officialspeak to make it sound like it's something important and necessary while conveying no useful information?
(2) The "enclosed documentation" consists only of the signature pages of several forms. I have the parts of the forms which say "I confirm the above information is correct" (a couple also specify that I understand that the information I give may be checked by the DWP) but I have no idea what the above information may or may not consist of. In other words, there is no opportunity for me to actually read what they are telling me to sign. What?!? How can a company whose raison d'etre is dealing with "vulnerable adults" possibly get away with encouraging people to sign things they have not read?
(3) The dates which have already been written into these signature pages are all "27/10/07". The Jobcentre DEA didn't even begin to refer me to Remploy until our sole meeting which was 3 days after that date - and Remploy didn't contact me until early December, by which time I was happily employed. In other words, they are encouraging me to falsify evidence which, if it is checked with the DWP, will be proven false. With my signature on it.
(4) Is it just me who thinks that £50 is rather a lot of recompense for the "inconvenience" of four signatures and a few bits of paper? Even if I had to hire someone to do it for me and sent it by courier, it wouldn't cost me anything like that. Given the extreme dodginess of the false dates and the not-enclosed documentation, one might even go so far as to consider the possibility (*avoids lawsuit*) that this may, by some people, be considered tantamount to a bribe for falsifying documentation...
With all this in mind, I decided to call Remploy to find out what the hell they thought they were playing at. After a short time, the woman whose name was on the letter phoned me back (woman? Yes. I should probably point out that to the best of my knowledge the male Remploy employee who was trying to help me find a way around the hours/NI problem a few weeks ago was not involved in this at all).
First she told me to just sign the boxes indicated and pop it all in the prepaid envelope and she'd take care of the rest, nothing to worry about, and then I'd get my £50.
I told her I understood that much, but before I started signing things, I wanted to know what it was that I was actually signing. She said they were just doing some admin for their own purposes, it's nothing I need to worry about, I just need to sign the forms, and they'll give me £50.
I asked why I was being asked to sign documents I had not been given to read, she said she was just trying to save on postage costs (they're offering £50 per person and they're worried about an extra 50p postage?!). By this time she was getting really annoyed with how awkward I was being and told me that if I was going to insist on being sent the full documents then she could do that, but really, there's no need, it's nothing I need to worry about, I just have to sign the forms and then they'll give me £50.
I told her that the dates were false. She tried to explain that they had to backdate things. I told her that her false dates could be easily proven false by the DWPs own records as they predated my original referral, and that I wasn't going to sign false documentation. At this point she changed tack to "okay, fine, don't sign the forms then. Just put them through a shredder and forget about it." I find it interesting that she specified that if I wasn't going to return the paperwork, I should destroy it. Maybe, despite her incredible lack of understanding of acceptable (never mind best) practice, she's really hot on data protection... or maybe she doesn't want me to show it to anyone. Oops.
She didn't seem to get that this sort of thing just wasn't on, or why I didn't want to participate, or why I felt organisations like Remploy should really know better.
£50 is a LOT of money to me (half a week's wages! more than a week's food!) and it really is quite difficult to effectively turn down free money. I suspect there will be others who have been sent this kind of letter who've decided that £50 is £50, and cheerfully signed away.
I don't want to have missed out for nothing. I have to do something with this, "alert the proper authorities" or similar, but I don't know where to start or who the proper authorities might be. Remploy, so far as I can ascertain, is government-owned and government-funded, and I don't know who they answer to or how to complain. I did ask about their internal complaints procedure and was told that a complaint would come straight back to that department to resolve - in other words, it wouldn't go any higher up the ladder and no one would be held accountable for bad practice.
I know I'm asking this a lot lately, but what would YOU do?
Friday, June 20, 2008
Wahoo!
Remember the ongoing saga of the Tax Credits problems?
Today I checked my bank statement, as you do, and saw that on 9th June, a payment of just under £20 was made straight into my account with the reference "Working Tax Credit".
PANIC! I don't want Tax Credits! I don't want to be entangled with them at all! I have an ongoing dispute with them! Why are they putting money into my account with no explanation?!?
Straight on the phone to a chap called Bob, who had a dig through my file and found a letter, dated 3rd June, which has been sent to me, but hasn't arrived here yet. So he read out the relevant bits to me.
An overpayment was made to me in the tax year April 2004 to April 2005.
This Inland Revenue intended to recover this overpayment by reducing my Tax Credits payments during the tax year April 2005 to April 2006.
I spoilt this plan by getting sick and eventually losing my job in June 2005. So that is why, in July 2005, I got a bill for over £500, consisting of the original overpayment, minus the £20 they had already recovered by reducing the payments I'd received between April 2005 and June 2005.
Communications since then have been variations on a rather repetitive theme of:
"Give us money!"
"I don't have that much money. And even if I did, I'm not convinced I owe it to you."
"Oh. Okay. (pause) Give us money!"
However, the letter I haven't received yet apparently says that the Appeals and Complaints bunch have reviewed my case and decided that the overpayment was due to "official error" and as such has been written off. This means that the money they "recovered" between April and June 2005 was in fact my money, so I can have it back. That's what the mystery payment into my bank account was about.
I'm so relieved. I was going to blog about something very very naughty which Remploy have done, but this is so much better. I hated the idea of being in debt, I hated the idea that I had somehow incurred debt without knowing I was doing it, and the letters demanding repayment and threatening legal action were really, really upsetting. But it's all over now, and I don't have to deal with them again.
I would say I'll try not to spend all of my almost-£20 at once, but thinking about it, I've probably spent more than that in phone calls and postage and photocopying and so on during the three-year course of this dispute. Definitely worth it to not have a £500 debt over my head, though.
Today I checked my bank statement, as you do, and saw that on 9th June, a payment of just under £20 was made straight into my account with the reference "Working Tax Credit".
PANIC! I don't want Tax Credits! I don't want to be entangled with them at all! I have an ongoing dispute with them! Why are they putting money into my account with no explanation?!?
Straight on the phone to a chap called Bob, who had a dig through my file and found a letter, dated 3rd June, which has been sent to me, but hasn't arrived here yet. So he read out the relevant bits to me.
An overpayment was made to me in the tax year April 2004 to April 2005.
This Inland Revenue intended to recover this overpayment by reducing my Tax Credits payments during the tax year April 2005 to April 2006.
I spoilt this plan by getting sick and eventually losing my job in June 2005. So that is why, in July 2005, I got a bill for over £500, consisting of the original overpayment, minus the £20 they had already recovered by reducing the payments I'd received between April 2005 and June 2005.
Communications since then have been variations on a rather repetitive theme of:
"Give us money!"
"I don't have that much money. And even if I did, I'm not convinced I owe it to you."
"Oh. Okay. (pause) Give us money!"
However, the letter I haven't received yet apparently says that the Appeals and Complaints bunch have reviewed my case and decided that the overpayment was due to "official error" and as such has been written off. This means that the money they "recovered" between April and June 2005 was in fact my money, so I can have it back. That's what the mystery payment into my bank account was about.
I'm so relieved. I was going to blog about something very very naughty which Remploy have done, but this is so much better. I hated the idea of being in debt, I hated the idea that I had somehow incurred debt without knowing I was doing it, and the letters demanding repayment and threatening legal action were really, really upsetting. But it's all over now, and I don't have to deal with them again.
I would say I'll try not to spend all of my almost-£20 at once, but thinking about it, I've probably spent more than that in phone calls and postage and photocopying and so on during the three-year course of this dispute. Definitely worth it to not have a £500 debt over my head, though.
Monday, June 02, 2008
Almost a jumper
Today is, I feel, a day for starting with the positive. So here is a picture of my work-in-progress jumper which, you will note, only needs Sleeve #2 and a little bit of sewing to make it an Actual Garment. I have made a start on Sleeve #2 and hopefully I will have it finished in a month or so. Definitely before the end of the year.
This morning we went to see a welfare advisor about the DLA appeal. I had to do a lot of signatures in the space of about ten minutes. Some were for paperwork to be sent to DWP and others were to confirm that I am allowing CAB to retain my information and whatnot. Serious hand-ache by the end of it - you could probably arrange the paperwork into the order I signed it just by how legible my autograph is on each piece. As I understand things, the advisor we saw today won't actually deal with my appeal. His role was more to advise us on whether we should appeal and how to go about it. But he's starting the appeal process for us and he's referring my case to another organisation, whose acronym I have forgotten, and someone from there will contact us to arrange to come to see us to go over things in depth. It all seems rather convoluted but at least the ball is rolling now.
Also on the positive, once that referral comes through we should be working with a named advisor on the basis of appointments. The CAB do their best, but they're over-stretched and under-staffed (almost entirely by volunteers) so you can't make an appointment - you have to turn up and wait, often several hours. If you're not prepared to wait, the theory goes, then your problems aren't that desperate. It's as fair as it can be, although I do feel sorry for people who wait patiently for a couple of hours but then leave before they get seen because they have to pick up their kids or get to work or whatnot. Today Steve and I were waiting just over two and a half hours, or, to put it another way, we'd arrived at the exact time the centre opened but we hadn't been queuing outside the door. Appointments will be much easier, not to mention less exhausting.
That said, despite the length of the wait, it wasn't so bad this time round. Rather than being held at the CAB proper in the town centre, it was a specific "Benefits and Debt Clinic" being held at a community centre which houses a hundred and one other things including a little subsidised cafe (you know the ones, lots of fruit and fairtrade stuff, no chocolate, crisps or fizzypop). So our two and a half hour wait took place while we were comfortably seated and enjoying a cuppa.
Georgette the Courgette is doing well. We have spent £1.49 on a bag of compost and now we're just wondering whether we have to find a container to put it in or if we can just use it like a grow-bag - to phrase it another way, will she need more depth or more width in her new home?
This morning we went to see a welfare advisor about the DLA appeal. I had to do a lot of signatures in the space of about ten minutes. Some were for paperwork to be sent to DWP and others were to confirm that I am allowing CAB to retain my information and whatnot. Serious hand-ache by the end of it - you could probably arrange the paperwork into the order I signed it just by how legible my autograph is on each piece. As I understand things, the advisor we saw today won't actually deal with my appeal. His role was more to advise us on whether we should appeal and how to go about it. But he's starting the appeal process for us and he's referring my case to another organisation, whose acronym I have forgotten, and someone from there will contact us to arrange to come to see us to go over things in depth. It all seems rather convoluted but at least the ball is rolling now.
Also on the positive, once that referral comes through we should be working with a named advisor on the basis of appointments. The CAB do their best, but they're over-stretched and under-staffed (almost entirely by volunteers) so you can't make an appointment - you have to turn up and wait, often several hours. If you're not prepared to wait, the theory goes, then your problems aren't that desperate. It's as fair as it can be, although I do feel sorry for people who wait patiently for a couple of hours but then leave before they get seen because they have to pick up their kids or get to work or whatnot. Today Steve and I were waiting just over two and a half hours, or, to put it another way, we'd arrived at the exact time the centre opened but we hadn't been queuing outside the door. Appointments will be much easier, not to mention less exhausting.
That said, despite the length of the wait, it wasn't so bad this time round. Rather than being held at the CAB proper in the town centre, it was a specific "Benefits and Debt Clinic" being held at a community centre which houses a hundred and one other things including a little subsidised cafe (you know the ones, lots of fruit and fairtrade stuff, no chocolate, crisps or fizzypop). So our two and a half hour wait took place while we were comfortably seated and enjoying a cuppa.
Georgette the Courgette is doing well. We have spent £1.49 on a bag of compost and now we're just wondering whether we have to find a container to put it in or if we can just use it like a grow-bag - to phrase it another way, will she need more depth or more width in her new home?
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