On Wednesday, I went to Naidex National at the NEC, Birmingham.
I have to say, Naidex itself wasn't as good as last year. Last year, I saw all sorts of innovative products and came home with lots of literature and a wish-list as long as my arm. I also picked up goodies like the National Trust's Access Guide, and was able to have demonstrated to me how much more comfortable an ergonomic office chair can be. A number of stallholders were communicating on Twitter, having actual conversations with people who said they were going to Naidex, encouraging them to come and say hi at their stall, and I dropped in on several of them. There were also a few inventor/entrepreneur types there, interested to hear ideas about what products we'd like to see in the future. I felt like I was the target market as a disabled adult in charge of her own home, equipment and finances.
This year was different. Only one company - PoolPods - engaged with me on Twitter. Their product, while I'm sure it's lovely, isn't really relevant to me - but I thought I would say hello anyway. Except I couldn't find them! Step One was easy, finding them in the list of exhibitors, they were listed under "P" for "PoolPods", simple. Stall G82. Step Two was slightly more difficult, trying to find Stall G82 on the printed room plan, but after a bit of hunting I spotted it tucked somewhere at the back of the hall. But Step Three, actually finding that stall? Couldn't do it. There were frequent traffic jams because a small cluster of two or three people standing in front of a stall could block half the aisle. Add to that the lack of signposting or labelling of the aisles (would it be so hard to have North-South aisles numbered 1, 2, 3, and East-West aisles labelled A, B, C?), the manoeuvrability issues of many attendees (wheelchairs don't tend to sidestep well, mobility scooters are often quite long) and the usual pedestrian traffic flow problems (people stopping for a chat on a busy intersection), and it was nigh-on impossible to follow a planned route to a particular point on the map. Nor was it possible to just wander up and down the aisles until you found what you were looking for - the layout was confusing, the aisles weren't continuous, and stalls faced all directions. There were several stalls I saw twice or three times and others I didn't see at all.
The small, interesting vendors with "everyday" disability products (such as Trabasack and DisabledGear) didn't seem to be present this year. I also felt that there were fewer stalls aimed at "people like me". For instance, I saw umpteen companies offering incredible, amazing off-road wheelchairs, powerchairs, hand-cycles and suchlike. We're talking massive knobbly off-road tyres, aggressive-looking LED arrays and exciting metallic paint finishes. That's great, but these aren't the sorts of chairs you can use for your everyday needs. You couldn't ride them into Starbucks, or a high-street shop, or a work meeting, or your kid's school for the parent-teacher evening. They also probably won't fold down to fit in the boot of the average Ford Focus, either. They're aimed at people who are disabled but who also have TENS of THOUSANDS of pounds to blow on leisure equipment over and above what they use every day. This made me feel sad. I mean, on the one hand it's terrific that disabled millionaires have so many choices of how to spend obscene sums of money, but on the other hand, products like comfortable wheelchair jeans are going to be far more relevant for far more people.
But! That was only part of why I went. The other part was to have the opportunity to meet up with other disabled people, and that was managed with great success. One is a very good friend who I have met before on several occasions, and we had a much-needed cup of tea together that in itself made up for the disappointment of the exhibition. Another person I have "known" and considered a friend for many years, but only online, and my PA tells me that my face lit up like a Christmas tree when I saw her for the first time. Others had familiar names and I'm pleased to be able to add faces. Eventually our group - consisting of two powerchair users, two manual wheelchair users (myself included), one person using a mobility scooter, and two people without any visible mobility aids at all - made our way into a well-known pub/restaurant chain for lunch.
Incidentally, I still get a thrill from that. Us being able to go and have lunch together in a pub is concrete proof that campaigning for equality works, has worked, and can continue to work. There's still a way to go, but it would have been unthinkable thirty years ago.
The meal was not spectacular. The company and the conversation were. There's an unusual sense of freedom when socialising with other disabled people, because you can actually go ahead and talk about disability issues without having to draw a diagram of the welfare/social care systems, and without being pitied, and without having to listen to any ablesplaining about how surely X doesn't happen any more, and the real problem is Y, and if you try Z it'll all be sorted out. No one feels the need to make the stupid jokes about running over people's toes and there's no sense of being the "odd one out". For me, it's also really refreshing to socialise in a role other than as "Steve's wife" - Steve is a nice person and so are his friends, and I like spending time with them, but it's a completely different thing to socialising as purely myself.
Of course we're all rather wiped out now. For spoonies, a look around an exhibition followed by a couple of hours having lunch and a chat with half a dozen friends can have repercussions for days on end. It's embarrassing to think about how long it's taken me to write this post. Nevertheless, I still think that despite the disappointment of the exhibition itself, the day was worth it.
Showing posts with label twitter. Show all posts
Showing posts with label twitter. Show all posts
Friday, May 04, 2012
Friday, November 04, 2011
Disabled, not dead
Yesterday, my Twitter feed was alight with people being gobsmacked by the content of Panorama's so-called "investigation" into benefit fraud. Interestingly, I understand that neither of the major culprits "investigated" and plastered across the BBC's prime viewing have actually been charged with benefit fraud. More worryingly, it appears that several of the activities the "investigator" took umbrage with weren't actually activities that would preclude a benefit claim...
I didn't watch the programme, in the end. Being, y'know, disabled and all, watching lengthy TV programmes late in the evening isn't something I'm very good at. I was going to catch it on iPlayer but have since decided that it will only upset me. So I want to make clear that this post is not a complaint about the Panorama programme because complaining about a programme I didn't watch and don't intend to watch seems rather ridiculous.
But I am qualified to comment on some of the urban myths surrounding disability, because they do impact me and my friends on a pretty regular basis. Facts and figures unless stated otherwise are drawn from HM Govt's Office for Disability Issues overview of official disability statistics, which can be found here.
Myth #1: Disabled people claiming benefits do not work.
In fact, about 48% of disabled people are employed (although this is compared to 78% of non-disabled people). Disability Living Allowance (DLA) is not means-tested and is awarded based on the impact a person's impairments have on certain aspects of their day to day life, such as washing, dressing, cooking, communicating and moving around. Disabled people often incur unavoidable expenses in trying to meet these essential needs, and DLA recognises that it is unfair to attempt to force working families and individuals to try and meet these non-negotiable and unasked-for additional costs out of their earned wages. Some disabled people work and claim Tax Credits, which is another legitimate form of benefit available to working people. And ESA has provision for Permitted Work for people who can only work very limited hours or in a very supported environment.*
Myth #2: Disabled people are obliged to be poor, and may not own assets.
While "a substantially higher proportion of individuals who live in families with disabled members live in poverty, compared to individuals who live in families where no one is disabled," wealth does not make a family immune to disabling illnesses or injuries. If you own your own home and live in it, then in the long run it's cheaper to let you carry on living there as long as possible than to attempt to rehouse you and have to pay Housing Benefit to you once the capital has evaporated.
Myth #3: Disabled people should not engage in physical activities.
Show me any person with an ongoing long-term physical or mental health condition, and I'll show you a person who has been advised by their medical professionals to take up swimming and/or gardening and/or going to a gym in the hope of staying active and healthy in so far as that's possible. It's always recommended, even if it doesn't get formally funded by the NHS under the guise of physiotherapy. Also: Paralympics, anybody?
Myth #4: Disabled people should not have a good time.
This is the most ridiculous of all - the idea that if a disabled person attends a party, or goes to the pub, or goes shopping, or is seen outdoors laughing with their friends, it's an affront to all right-thinking taxpayers and incontrovertible proof that "there's nothing wrong with him".
We live with our conditions. It's not like being sick and miserable for three days, but it's also not like being sick and miserable for three decades. It's more like being sick and miserable for three months, getting an idea of what's happening, spending three months in a horrible chaotic whirl as you realise your life is changing forever, taking anything from a few months to a few years to grieve and come to terms with what is happening to you, and then... you live. Which means you grab every opportunity you can to have a good time and laugh with your friends, just like any other person. You abandon the "miserable" by the side of the road.** We laugh. So sue us. We're not locked in a box out of sight. We're disabled, not dead.
* This is a gross over-simplification because to properly and fully explain would take another ten blogposts.
** At least until the next time you find yourself and your community under attack in the media.
I didn't watch the programme, in the end. Being, y'know, disabled and all, watching lengthy TV programmes late in the evening isn't something I'm very good at. I was going to catch it on iPlayer but have since decided that it will only upset me. So I want to make clear that this post is not a complaint about the Panorama programme because complaining about a programme I didn't watch and don't intend to watch seems rather ridiculous.
But I am qualified to comment on some of the urban myths surrounding disability, because they do impact me and my friends on a pretty regular basis. Facts and figures unless stated otherwise are drawn from HM Govt's Office for Disability Issues overview of official disability statistics, which can be found here.
Myth #1: Disabled people claiming benefits do not work.
In fact, about 48% of disabled people are employed (although this is compared to 78% of non-disabled people). Disability Living Allowance (DLA) is not means-tested and is awarded based on the impact a person's impairments have on certain aspects of their day to day life, such as washing, dressing, cooking, communicating and moving around. Disabled people often incur unavoidable expenses in trying to meet these essential needs, and DLA recognises that it is unfair to attempt to force working families and individuals to try and meet these non-negotiable and unasked-for additional costs out of their earned wages. Some disabled people work and claim Tax Credits, which is another legitimate form of benefit available to working people. And ESA has provision for Permitted Work for people who can only work very limited hours or in a very supported environment.*
Myth #2: Disabled people are obliged to be poor, and may not own assets.
While "a substantially higher proportion of individuals who live in families with disabled members live in poverty, compared to individuals who live in families where no one is disabled," wealth does not make a family immune to disabling illnesses or injuries. If you own your own home and live in it, then in the long run it's cheaper to let you carry on living there as long as possible than to attempt to rehouse you and have to pay Housing Benefit to you once the capital has evaporated.
Myth #3: Disabled people should not engage in physical activities.
Show me any person with an ongoing long-term physical or mental health condition, and I'll show you a person who has been advised by their medical professionals to take up swimming and/or gardening and/or going to a gym in the hope of staying active and healthy in so far as that's possible. It's always recommended, even if it doesn't get formally funded by the NHS under the guise of physiotherapy. Also: Paralympics, anybody?
Myth #4: Disabled people should not have a good time.
This is the most ridiculous of all - the idea that if a disabled person attends a party, or goes to the pub, or goes shopping, or is seen outdoors laughing with their friends, it's an affront to all right-thinking taxpayers and incontrovertible proof that "there's nothing wrong with him".
We live with our conditions. It's not like being sick and miserable for three days, but it's also not like being sick and miserable for three decades. It's more like being sick and miserable for three months, getting an idea of what's happening, spending three months in a horrible chaotic whirl as you realise your life is changing forever, taking anything from a few months to a few years to grieve and come to terms with what is happening to you, and then... you live. Which means you grab every opportunity you can to have a good time and laugh with your friends, just like any other person. You abandon the "miserable" by the side of the road.** We laugh. So sue us. We're not locked in a box out of sight. We're disabled, not dead.
* This is a gross over-simplification because to properly and fully explain would take another ten blogposts.
** At least until the next time you find yourself and your community under attack in the media.
Saturday, July 02, 2011
RAF Cosford
This weekend Steve and I did something completely not-wedding-related. We went to RAF Cosford, a RAF museum in Shropshire.
Getting there was an adventure in itself. We decided to invite our twitterfriend @gentlechaos along and offered to give her a lift. This meant fitting three adults and two wheelchairs, plus all the other "stuff" we were each bringing along for a daytrip, safely and legally and comfortably enough for a 25-mile journey, into a three-door fiat Punto. It was a little bit on the tricky side, but we managed really quite well.
We also met up with one of Steve's friends who was able to give me a few more photos from the wedding. That was great, but the best bit of it was going around in a group of four like that - two walking and two wheelchair users. It was a wonderfully normalising experience as it meant none of us were the odd one out.
Being an airfield, Cosford starts off ahead of the game on wheelchair access. It's a huge flattish self-contained area and the buildings are huge aircraft hangars with lovely smooth flat floors that are a positive delight to move along. However, to make it even better, they have a small fleet (possibly a fleetlet?) of mobility scooters and a few manual wheelchairs available for no charge. There's also no charge for entry, although there is a small car parking fee (even for blue badge holders) of £3 per car.
There's a brilliant hands-on area with lots of little gadgets and gizmos that demonstrate, and allow visitors to experiment with, the principles used in different types of aircraft. It's allegedly for kids, but most of the peopleplaying with appreciating the demonstrative devices were 5ft or taller.
The Cold War exhibition is particularly striking, with aircraft suspended from the ceilings in a very dramatic (and slightly unnerving) fashion.
Like most museums, there's far too much information to absorb on a single visit, which is a shame because by the time we next go back I'll have probably forgotten most of what I did pick up. On the other hand, it means we'll be able to go back without it being repetitive or boring, even if the exhibits themselves haven't changed.
Getting there was an adventure in itself. We decided to invite our twitterfriend @gentlechaos along and offered to give her a lift. This meant fitting three adults and two wheelchairs, plus all the other "stuff" we were each bringing along for a daytrip, safely and legally and comfortably enough for a 25-mile journey, into a three-door fiat Punto. It was a little bit on the tricky side, but we managed really quite well.
We also met up with one of Steve's friends who was able to give me a few more photos from the wedding. That was great, but the best bit of it was going around in a group of four like that - two walking and two wheelchair users. It was a wonderfully normalising experience as it meant none of us were the odd one out.
Being an airfield, Cosford starts off ahead of the game on wheelchair access. It's a huge flattish self-contained area and the buildings are huge aircraft hangars with lovely smooth flat floors that are a positive delight to move along. However, to make it even better, they have a small fleet (possibly a fleetlet?) of mobility scooters and a few manual wheelchairs available for no charge. There's also no charge for entry, although there is a small car parking fee (even for blue badge holders) of £3 per car.
There's a brilliant hands-on area with lots of little gadgets and gizmos that demonstrate, and allow visitors to experiment with, the principles used in different types of aircraft. It's allegedly for kids, but most of the people
The Cold War exhibition is particularly striking, with aircraft suspended from the ceilings in a very dramatic (and slightly unnerving) fashion.
Like most museums, there's far too much information to absorb on a single visit, which is a shame because by the time we next go back I'll have probably forgotten most of what I did pick up. On the other hand, it means we'll be able to go back without it being repetitive or boring, even if the exhibits themselves haven't changed.
Thursday, May 13, 2010
Such Tweet Sorrow - applause
Previous posts:
Such Tweet Sorrow posted on April 12th, 2010.
Indescribable posted on April 18th, 2010.
That may be true. But this afternoon, when I told Steve that the five-week Twitter production of Such Tweet Sorrow was finally over, and he jokingly asked "was there a happy ending?" the answer, strangely, was Yes.
I mean, okay, four out of six characters died. But the difference in the medium changed the place where the play ended and therefore the feel of the ending.
If you see Romeo and Juliet on stage or film, you barely have time to wipe your eyes at the end of the suicide scene before you are presented with the Prince's summing-up and a curtain call.
In real-time, however... Juliet drank the sleeping draught on Tuesday night. Romeo found her early on Wednesday morning. For about an hour he agonised over what to do... then his not-so-quick drugs took another hour to work, and all we knew was silence until Juliet awoke. She took half an hour to assess the situation, sent out a heartfelt goodbye to her sister (Jess, the "nurse"), and then it was silence again until Jess found the bodies. Those long silences really took an emotional toll on the involved audience (affectionately known as #teamchorus).
Too upset to be delivering a neat and tidy epilogue, Jess spent the afternoon and evening railing at her father and portraying despair in messages that were chillingly close to those sent by the young lovers before their deaths... followed by... silence. Jess being an altered character, no one knew whether she would be likely to do something drastic. I went to bed on Wednesday night half expecting to hear news that she, too, had killed herself - the relief on Thursday morning when she tweeted complaining of a hangover was immense. Especially since Jess was one of the more likeable characters.
Over the course of the morning, Jess (and the audience!) got to grips with the facts of the deaths with the benefit of a night's sleep. The summing-up was then delivered as dialogue between Jess and the Friar and although there was a sense of loss, there was also a sense of survival and new beginnings. It felt like a positive ending.
Apparently there is a curtain call tomorrow, which I am very much looking forward to. If nothing else, I need to tell Charlotte Wakefield that it's just Juliet I couldn't stand, and that since Juliet is now dead, I no longer bear her any ill will. I might have *ahem* been a little bit aggressive about my dislike of Juliet and I really hope the actress doesn't take it personally.
Was this an accessible performance? For me, yes. Certainly it saved me from having to deal with practical access issues in and around Stratford in order to experience an RSC production (although I still want to do that one day). And the beauty of Twitter is that if you need to sleep or medicate or stretch or rest or throw up, all of the play is right there waiting for you to catch up on when you come back. However, there were a lot of tweets, and I know several people had to drop out on that basis - in many ways it is easier to devote two hours of undivided attention to the play in isolation, than to immerse yourself into a production that has more in common with a role-playing game than a theatre visit.
I will definitely want to be involved in another Twitter-Shakespeare project. A large part of that is because it is a case of "being involved" rather than merely "watching". Accessible interactive theatre in your own home, where you respond to the characters and the characters respond to you - it beats TV.
All that remains is to stand and applaud:
The Cast
@romeo_mo - Romeo Montague - James Barrett
@julietcap16 - Juliet Capulet - Charlotte Wakefield
@LaurenceFriar - Laurence Friar - Geoffrey Newland
@mercuteio - Mercutio - Ben Ashton
@tybalt_cap - Tybalt Capulet - Mark Holgate
@Jess_nurse - Jess "Nurse" Capulet - Lu Corfield
Producer
Charles Hunter
Director
Roxana Silbert
Writers
Bethan Marlow
Tim Wright
All at Such_Tweet, The RSC, Mudlark, 4ip, and Screen WM.
My fellow #suchtweet Groundlings including #teamchorus and #mercutiogroupies
and the mysterious @jago_klepto...
Such Tweet Sorrow posted on April 12th, 2010.
Indescribable posted on April 18th, 2010.
For never was a tale of more woe,
Than this of Juliet, and her Romeo.
That may be true. But this afternoon, when I told Steve that the five-week Twitter production of Such Tweet Sorrow was finally over, and he jokingly asked "was there a happy ending?" the answer, strangely, was Yes.
I mean, okay, four out of six characters died. But the difference in the medium changed the place where the play ended and therefore the feel of the ending.
If you see Romeo and Juliet on stage or film, you barely have time to wipe your eyes at the end of the suicide scene before you are presented with the Prince's summing-up and a curtain call.
In real-time, however... Juliet drank the sleeping draught on Tuesday night. Romeo found her early on Wednesday morning. For about an hour he agonised over what to do... then his not-so-quick drugs took another hour to work, and all we knew was silence until Juliet awoke. She took half an hour to assess the situation, sent out a heartfelt goodbye to her sister (Jess, the "nurse"), and then it was silence again until Jess found the bodies. Those long silences really took an emotional toll on the involved audience (affectionately known as #teamchorus).
Too upset to be delivering a neat and tidy epilogue, Jess spent the afternoon and evening railing at her father and portraying despair in messages that were chillingly close to those sent by the young lovers before their deaths... followed by... silence. Jess being an altered character, no one knew whether she would be likely to do something drastic. I went to bed on Wednesday night half expecting to hear news that she, too, had killed herself - the relief on Thursday morning when she tweeted complaining of a hangover was immense. Especially since Jess was one of the more likeable characters.
Over the course of the morning, Jess (and the audience!) got to grips with the facts of the deaths with the benefit of a night's sleep. The summing-up was then delivered as dialogue between Jess and the Friar and although there was a sense of loss, there was also a sense of survival and new beginnings. It felt like a positive ending.
Apparently there is a curtain call tomorrow, which I am very much looking forward to. If nothing else, I need to tell Charlotte Wakefield that it's just Juliet I couldn't stand, and that since Juliet is now dead, I no longer bear her any ill will. I might have *ahem* been a little bit aggressive about my dislike of Juliet and I really hope the actress doesn't take it personally.
Was this an accessible performance? For me, yes. Certainly it saved me from having to deal with practical access issues in and around Stratford in order to experience an RSC production (although I still want to do that one day). And the beauty of Twitter is that if you need to sleep or medicate or stretch or rest or throw up, all of the play is right there waiting for you to catch up on when you come back. However, there were a lot of tweets, and I know several people had to drop out on that basis - in many ways it is easier to devote two hours of undivided attention to the play in isolation, than to immerse yourself into a production that has more in common with a role-playing game than a theatre visit.
I will definitely want to be involved in another Twitter-Shakespeare project. A large part of that is because it is a case of "being involved" rather than merely "watching". Accessible interactive theatre in your own home, where you respond to the characters and the characters respond to you - it beats TV.
All that remains is to stand and applaud:
The Cast
@romeo_mo - Romeo Montague - James Barrett
@julietcap16 - Juliet Capulet - Charlotte Wakefield
@LaurenceFriar - Laurence Friar - Geoffrey Newland
@mercuteio - Mercutio - Ben Ashton
@tybalt_cap - Tybalt Capulet - Mark Holgate
@Jess_nurse - Jess "Nurse" Capulet - Lu Corfield
Producer
Charles Hunter
Director
Roxana Silbert
Writers
Bethan Marlow
Tim Wright
All at Such_Tweet, The RSC, Mudlark, 4ip, and Screen WM.
My fellow #suchtweet Groundlings including #teamchorus and #mercutiogroupies
and the mysterious @jago_klepto...
Sunday, April 18, 2010
Indescribable
In my last post, I talked about the Twitter event Such Tweet Sorrow, a production of Romeo and Juliet being played out in real time over five weeks.
We're one week in and it's still a really tricky concept to describe. The biggest problem is that first, you have to describe Twitter itself which is still really hard to do for anyone who isn't already using it. Trying to describe the Such Tweet project itself, on top of that, before you can even begin to talk about how much you're enjoying it, what you think about it, how it makes you feel... it's nigh on impossible.
I'll give it a go anyway. I think Such Tweet Sorrow is most like an immersive fantasy game along the lines of Dungeons and Dragons or perhaps Knightmare. A bunch of people improvising within their given character descriptions interact with you; you are supposed to pretend that they really are those characters. Except that it doesn't require special equipment, like-minded friends, pens and paper, or time set aside to play, and it continues 24/7. As a Twitter user, it slots almost unnoticeably into the life which I am already living.
That's the bit that makes it a little disturbing. Due to the circumstances of my life - I am disabled, I work alone from home, I cannot drive and am waiting on a decent wheelchair - most of my interaction does happen online, and as such I do have several good friends (not to mention clients and suppliers) who I have never physically met.
There are also dozens, if not hundreds, of people who I consider to be part of my wider social circle. We're not friends in the sense of having heart-to-heart private conversations about our innermost feelings, but there's some shared interests, some common acquaintances, and we've had a couple of brief direct exchanges - we're friendly even though we're not bosom buddies. This is the area that the Such Tweet cast fall into. The stream of posts about whatever happens to be on their characters' minds - the progress of a football game, a trip to the pub, a crap day at school - is melding seamlessly into all the other incoming tweets about Dr Who, Mad Cap'n Tom's bid for Parliament, current affairs, Naidex 2010, and biscuit preferences. Every so often, I reply to an incoming tweet. Every so often, someone replies to one of my tweets. It's incredibly normal social networking and an outsider with no knowledge of Shakespeare or the Such Tweet project would probably not be able to pick out the fictional characters.
With it all being mixed in, the line between characters and real people gets blurred. I am reacting to the characters' tweets in the same way I would react to those of real people. The most striking example of this for me so far was yesterday, when @laurencefriar sent out a tweet about meeting some "courageous" disabled football supporters. Anyone who knows the Ouchers knows that the best way to get our hackles rising is to start throwing around words like "courage" "brave" and "inspiration" and I simply couldn't help the way it made me feel (ie: angry). I had to seriously remind myself that @laurencefriar is a made-up character who is supposed to be the sort of person who comes out with tripe like that. Then I thought, well, I'm supposed to respond, an emotional response to well-performed characters is entirely permissible and means the actors are doing their job right.
But it's made me start to worry about what's coming. The writers have admitted that they're not observing a religious adherence to Shakespeare's storyline, but it's safe to say that the basics remain in place - which means it's not long to go before there are a couple of violent deaths in my social circle.
If I find myself getting angry about "courageous" then who knows how I'll react to that?
We're one week in and it's still a really tricky concept to describe. The biggest problem is that first, you have to describe Twitter itself which is still really hard to do for anyone who isn't already using it. Trying to describe the Such Tweet project itself, on top of that, before you can even begin to talk about how much you're enjoying it, what you think about it, how it makes you feel... it's nigh on impossible.
I'll give it a go anyway. I think Such Tweet Sorrow is most like an immersive fantasy game along the lines of Dungeons and Dragons or perhaps Knightmare. A bunch of people improvising within their given character descriptions interact with you; you are supposed to pretend that they really are those characters. Except that it doesn't require special equipment, like-minded friends, pens and paper, or time set aside to play, and it continues 24/7. As a Twitter user, it slots almost unnoticeably into the life which I am already living.
That's the bit that makes it a little disturbing. Due to the circumstances of my life - I am disabled, I work alone from home, I cannot drive and am waiting on a decent wheelchair - most of my interaction does happen online, and as such I do have several good friends (not to mention clients and suppliers) who I have never physically met.
There are also dozens, if not hundreds, of people who I consider to be part of my wider social circle. We're not friends in the sense of having heart-to-heart private conversations about our innermost feelings, but there's some shared interests, some common acquaintances, and we've had a couple of brief direct exchanges - we're friendly even though we're not bosom buddies. This is the area that the Such Tweet cast fall into. The stream of posts about whatever happens to be on their characters' minds - the progress of a football game, a trip to the pub, a crap day at school - is melding seamlessly into all the other incoming tweets about Dr Who, Mad Cap'n Tom's bid for Parliament, current affairs, Naidex 2010, and biscuit preferences. Every so often, I reply to an incoming tweet. Every so often, someone replies to one of my tweets. It's incredibly normal social networking and an outsider with no knowledge of Shakespeare or the Such Tweet project would probably not be able to pick out the fictional characters.
With it all being mixed in, the line between characters and real people gets blurred. I am reacting to the characters' tweets in the same way I would react to those of real people. The most striking example of this for me so far was yesterday, when @laurencefriar sent out a tweet about meeting some "courageous" disabled football supporters. Anyone who knows the Ouchers knows that the best way to get our hackles rising is to start throwing around words like "courage" "brave" and "inspiration" and I simply couldn't help the way it made me feel (ie: angry). I had to seriously remind myself that @laurencefriar is a made-up character who is supposed to be the sort of person who comes out with tripe like that. Then I thought, well, I'm supposed to respond, an emotional response to well-performed characters is entirely permissible and means the actors are doing their job right.
But it's made me start to worry about what's coming. The writers have admitted that they're not observing a religious adherence to Shakespeare's storyline, but it's safe to say that the basics remain in place - which means it's not long to go before there are a couple of violent deaths in my social circle.
If I find myself getting angry about "courageous" then who knows how I'll react to that?
Monday, February 15, 2010
Engaged!
Potted Summary for people in a rush who can't be bothered with all these words: This weekend, Evilstevie proposed to me. It was very romantic. I said yes.
Extended Version, with pictures**:
It all started a few weeks ago when Steve borrowed my phone and inserted a "Top Sekrit Weekend Away" at a location defined only as "Elsewhere" for the 13th and 14th of February. Nothing too unusual in that, we've had quite a few weekends away somewhere, why not do it for Valentines' Day? It's as good an excuse as any.
As the weekend drew nearer, Steve told me he was trying to figure out where to eat on the Saturday night. What with it being Valentines and all, it would be best to book a table somewhere rather than trusting to luck, but he was worried about showing me restaurant options because it would make our overall destination less of a surprise. So I told him that I thought I could guess that much anyway. I was fairly certain that he had arranged for us to stay at Rhyd Hir*, a lovely guest house run by the parents of a friend. After a moment's silence and a query about whether I'd been copied in on the reservation emails or something, he confirmed that I was correct.
Although this made deciding on a place for dinner that much easier, it did make Steve fret a little over the next few days about how much I had guessed and whether there was a security leak. Meanwhile, I was being so smugly self-satisfied about my skills of deduction concerning our accommodation, that it never occurred to me there might be more to figure out...
Forward to Saturday, and after a fairly lazy morning we got ready to leave. This took its usual pattern of me getting ready and then sitting with a book for a while so that Steve could flit about the place rearranging his camera bag, swapping lenses, hunting down memory cards, and so on. Nothing odd there. By lunchtime we were in the car and on the road, with a plan to grab some lunch on the way and then enjoy a nice, leisurely drive to Wales, diverting our route as usual on the basis of tea-breaks, interesting-looking brown tourism signs, and pretty photo opportunities.
We found the restaurant about two hours before our table reservation, so instead we went for a bit of a cruise around finding somewhere nice to watch the sun go down, which was very romantic regardless of the date. Then it was back to the restaurant where dinner was both delicious and plentiful - so much so that when we arrived at Rhyd Hir, we eagerly accepted Diane and David's kind offer of a cuppa but emphatically refused their offer of a slice of cake or a biscuit. Once we'd both regained the ability to fold in the middle, we made our way up to a nice, warm, comfortable room where a bed about the same size as my old flat was a very welcome sight indeed.
In the morning I woke up to birdsong outside, which is nice at this time of year when 'dawn' more or less coincides with a reasonable clock-time to be waking up. We'd agreed with Diane and David that we would be down for breakfast at about 9am, but this was another advantage to the small-guest-house not-a-huge-hotel thing - I didn't have to wait for Steve to be up and about and showered and awake so that he could help me traverse miles of corridor in search of a semi-decent cup of tea. I could let him get on with his shower in peace while I took myself downstairs and was rewarded with an actual pot of tea, and indeed a sofa to sit on while I drank it. This was a good thing because it meant I was properly awake to face Breakfast, a meal which deserved full attention and a capital letter. I almost regretted having cleared my plate at dinner the night before. I was utterly baffled by Steve's decision to only have porridge.
After breakfast, and in his role as "father of a friend" rather than "host", David took us for a bit of a tour around the local area, including some spots where Steve could get some nice pictures. Lots of it was places where we wouldn't otherwise have gone - in some parts of rural Wales it can be hard to tell what's a road leading to somewhere and what's someone's three-mile-long private driveway.
David took us back to Rhyd Hir, and then we picked up our bags, said our goodbyes, and set off for Lake Vyrnwy. At one point, we stopped at a viewing area with a gorgeous aspect on the lake. As Steve fiddled with his camera gear, I pulled out my phone and wondered out loud whether it was worth turning it on to see if there was a signal from this vantage point. I really should have noticed the panic with which Steve told me there wasn't and started getting back into the car saying he'd get better shots from somewhere else.
The 'somewhere else' we ended up was a place we'd been to before - still part of Lake Vyrnwy, but rather more secluded. There's a pretty waterfall, a stream, a nice grassy area with wooden picnic benches, and if you know the road (track) is there and where it goes, you can drive right up to it. Steve had told me that he wanted to try and get a nice picture of the two of us there.
So here's the nice picture of the two of us, complete with hillside, waterfall, stream and cuddle. The camera is on a tripod about two metres away from us. The car is about five metres beyond that. There is a remote control in Steve's left hand (away from the camera) which he is using to operate the shutter. I have happily stood there for a couple of minutes in my role as a marker while he takes test shots, scuttles back and forth making adjustments and so on... nothing unusual is happening. Happy with his camera setup, he keeps whispering jokes and sweet nothings to make me smile and every so often he clicks the remote to take a picture. It's all very romantic and lovely and, although I'm starting to get really tired, I'm having a great time and am really pleased that we've had such a fantastic and relaxing weekend.
Then Steve drops to one knee and asks me to marry him. Not believing him to be serious, I basically tell him not to be silly, the weekend has been fabulous and he doesn't have to start proposing in order to make it better.
Steve assures me he is serious, it's not a spur of the moment thing, he's not just trying to make me happy in the immediate sense, and that he has a ring to prove it. If you zoom in on this one, you see me gaping in shock and turning a funny colour, and him looking both smug and relieved that I hadn't guessed all of his surprises...
Predictably I've lost concentration on standing as I am slightly overwhelmed. At least now we both have wet knees. Steve gently reminds me that it is traditional for me to give him a yes-or-no answer. It's a yes.
As the good old Welsh drizzle picks up, we whisk ourselves and the camera back into the car. After a lot of giggling and deep breaths, Steve changes lenses for a shot of the ring in place. We find our way back to the main road and from there to the Lakeview Tearooms for a well-earned cuppa and something to eat - the appetite which had deserted Steve at breakfast has for some reason come back with a vengeance.
As we drive back to civilisation, Steve also explains to me why he'd been so twitchy about my phone. Knowing that we would be out of signal, he'd set up his server to upload this photograph, and tweet it with the words "fingers crossed @batsgirl says yes..." at lunchtime, so that when we got back into signal (after the proposal) our twitterfriends would have begun to respond and it would be all squeaky and yay. But in his increasing pre-proposal anxiety, he started worrying that the tweet might have gone through early, and I might see it before he'd actually asked the question and he really didn't want to inadvertently propose via twitter.
Knitters will notice that the ring has a bezel setting rather than a prong setting, so that I don't have to worry about it snagging on anything. Apparently Steve had done his research and decided on this before he set out to buy, but had a hard time explaining to the various jewellers that yes, prong settings are very pretty, and very traditional, but he wanted to get me something I could wear every day rather than something to store in my jewellery box.
I'm still getting my head around it, and we haven't set a date yet - we've got as far as "probably summertime" and "probably not this year". We're still too busy giggling to have a sensible discussion about practicalities.
*Access note: Rhyd Hir isn't wheelchair-accessible and the bedrooms are upstairs. But it's not much bigger than a large-ish family home and there's parking right by the door. So if, like me, you can manage indoor-wobbling, it's not a big challenge - plus, there's no epic trek along miles of corridor to find anything.
**All pictures are used with permission, copyright Evilstevie, all rights reserved. Click on the pictures to see the flickr pages for each photo, complete with notes.
Extended Version, with pictures**:
It all started a few weeks ago when Steve borrowed my phone and inserted a "Top Sekrit Weekend Away" at a location defined only as "Elsewhere" for the 13th and 14th of February. Nothing too unusual in that, we've had quite a few weekends away somewhere, why not do it for Valentines' Day? It's as good an excuse as any.
As the weekend drew nearer, Steve told me he was trying to figure out where to eat on the Saturday night. What with it being Valentines and all, it would be best to book a table somewhere rather than trusting to luck, but he was worried about showing me restaurant options because it would make our overall destination less of a surprise. So I told him that I thought I could guess that much anyway. I was fairly certain that he had arranged for us to stay at Rhyd Hir*, a lovely guest house run by the parents of a friend. After a moment's silence and a query about whether I'd been copied in on the reservation emails or something, he confirmed that I was correct.
Although this made deciding on a place for dinner that much easier, it did make Steve fret a little over the next few days about how much I had guessed and whether there was a security leak. Meanwhile, I was being so smugly self-satisfied about my skills of deduction concerning our accommodation, that it never occurred to me there might be more to figure out...
Forward to Saturday, and after a fairly lazy morning we got ready to leave. This took its usual pattern of me getting ready and then sitting with a book for a while so that Steve could flit about the place rearranging his camera bag, swapping lenses, hunting down memory cards, and so on. Nothing odd there. By lunchtime we were in the car and on the road, with a plan to grab some lunch on the way and then enjoy a nice, leisurely drive to Wales, diverting our route as usual on the basis of tea-breaks, interesting-looking brown tourism signs, and pretty photo opportunities.
We found the restaurant about two hours before our table reservation, so instead we went for a bit of a cruise around finding somewhere nice to watch the sun go down, which was very romantic regardless of the date. Then it was back to the restaurant where dinner was both delicious and plentiful - so much so that when we arrived at Rhyd Hir, we eagerly accepted Diane and David's kind offer of a cuppa but emphatically refused their offer of a slice of cake or a biscuit. Once we'd both regained the ability to fold in the middle, we made our way up to a nice, warm, comfortable room where a bed about the same size as my old flat was a very welcome sight indeed.
In the morning I woke up to birdsong outside, which is nice at this time of year when 'dawn' more or less coincides with a reasonable clock-time to be waking up. We'd agreed with Diane and David that we would be down for breakfast at about 9am, but this was another advantage to the small-guest-house not-a-huge-hotel thing - I didn't have to wait for Steve to be up and about and showered and awake so that he could help me traverse miles of corridor in search of a semi-decent cup of tea. I could let him get on with his shower in peace while I took myself downstairs and was rewarded with an actual pot of tea, and indeed a sofa to sit on while I drank it. This was a good thing because it meant I was properly awake to face Breakfast, a meal which deserved full attention and a capital letter. I almost regretted having cleared my plate at dinner the night before. I was utterly baffled by Steve's decision to only have porridge.
After breakfast, and in his role as "father of a friend" rather than "host", David took us for a bit of a tour around the local area, including some spots where Steve could get some nice pictures. Lots of it was places where we wouldn't otherwise have gone - in some parts of rural Wales it can be hard to tell what's a road leading to somewhere and what's someone's three-mile-long private driveway.
David took us back to Rhyd Hir, and then we picked up our bags, said our goodbyes, and set off for Lake Vyrnwy. At one point, we stopped at a viewing area with a gorgeous aspect on the lake. As Steve fiddled with his camera gear, I pulled out my phone and wondered out loud whether it was worth turning it on to see if there was a signal from this vantage point. I really should have noticed the panic with which Steve told me there wasn't and started getting back into the car saying he'd get better shots from somewhere else.
The 'somewhere else' we ended up was a place we'd been to before - still part of Lake Vyrnwy, but rather more secluded. There's a pretty waterfall, a stream, a nice grassy area with wooden picnic benches, and if you know the road (track) is there and where it goes, you can drive right up to it. Steve had told me that he wanted to try and get a nice picture of the two of us there.
So here's the nice picture of the two of us, complete with hillside, waterfall, stream and cuddle. The camera is on a tripod about two metres away from us. The car is about five metres beyond that. There is a remote control in Steve's left hand (away from the camera) which he is using to operate the shutter. I have happily stood there for a couple of minutes in my role as a marker while he takes test shots, scuttles back and forth making adjustments and so on... nothing unusual is happening. Happy with his camera setup, he keeps whispering jokes and sweet nothings to make me smile and every so often he clicks the remote to take a picture. It's all very romantic and lovely and, although I'm starting to get really tired, I'm having a great time and am really pleased that we've had such a fantastic and relaxing weekend.
Then Steve drops to one knee and asks me to marry him. Not believing him to be serious, I basically tell him not to be silly, the weekend has been fabulous and he doesn't have to start proposing in order to make it better.
Steve assures me he is serious, it's not a spur of the moment thing, he's not just trying to make me happy in the immediate sense, and that he has a ring to prove it. If you zoom in on this one, you see me gaping in shock and turning a funny colour, and him looking both smug and relieved that I hadn't guessed all of his surprises...
Predictably I've lost concentration on standing as I am slightly overwhelmed. At least now we both have wet knees. Steve gently reminds me that it is traditional for me to give him a yes-or-no answer. It's a yes.
As the good old Welsh drizzle picks up, we whisk ourselves and the camera back into the car. After a lot of giggling and deep breaths, Steve changes lenses for a shot of the ring in place. We find our way back to the main road and from there to the Lakeview Tearooms for a well-earned cuppa and something to eat - the appetite which had deserted Steve at breakfast has for some reason come back with a vengeance.
As we drive back to civilisation, Steve also explains to me why he'd been so twitchy about my phone. Knowing that we would be out of signal, he'd set up his server to upload this photograph, and tweet it with the words "fingers crossed @batsgirl says yes..." at lunchtime, so that when we got back into signal (after the proposal) our twitterfriends would have begun to respond and it would be all squeaky and yay. But in his increasing pre-proposal anxiety, he started worrying that the tweet might have gone through early, and I might see it before he'd actually asked the question and he really didn't want to inadvertently propose via twitter.
Knitters will notice that the ring has a bezel setting rather than a prong setting, so that I don't have to worry about it snagging on anything. Apparently Steve had done his research and decided on this before he set out to buy, but had a hard time explaining to the various jewellers that yes, prong settings are very pretty, and very traditional, but he wanted to get me something I could wear every day rather than something to store in my jewellery box.
I'm still getting my head around it, and we haven't set a date yet - we've got as far as "probably summertime" and "probably not this year". We're still too busy giggling to have a sensible discussion about practicalities.
*Access note: Rhyd Hir isn't wheelchair-accessible and the bedrooms are upstairs. But it's not much bigger than a large-ish family home and there's parking right by the door. So if, like me, you can manage indoor-wobbling, it's not a big challenge - plus, there's no epic trek along miles of corridor to find anything.
**All pictures are used with permission, copyright Evilstevie, all rights reserved. Click on the pictures to see the flickr pages for each photo, complete with notes.
Friday, April 06, 2007
Lovely Day (and Twitter)
As I'm at Steve's at the moment, and the weather is getting warmer, we've wiped down and charged up the scooter and today I took it out.
I had planned to simply trundle off to Asda, and get some milk and whatnot for the weekend. It's a nice enough little trundle and has the added bonus of being productive.
However, Steve convinced me that it would be a better idea for me to go into town, maybe go to the park, have an ice cream, that kind of thing. I didn't take much convincing - it's just been far too gorgeous a day to waste.
So off I trundled into town. After a bit, Steve got on the motorbike and came to meet me for lunch at the Victoria Coffee House, and then we went for a walk in the park, Jephson Gardens. It's easy to control the scooter with one hand, so we were able to hold hands like any other couple - because it's nice, rather than for support. I think a few people wondered why he was holding a motorbike helmet though.
Regrettably I had to turn down Steve's offer of taking me out for dinner tonight, but nevertheless, he went and got some takeaway and we've had a wonderfully relaxing evening in. Ahhh.
In other news, I've started playing with Twitter. I'm not entirely sure how to find people on it, I think you need to exchange email addresses first so that one of you can send the other an invite? but really I am a long way from certain about that. If you use Twitter and you want to be added to my friends, post a comment containing your email address. I'll then invite you, but won't publish your comment, so your email address won't be shown to the world from here.
(edited to add tags)
I had planned to simply trundle off to Asda, and get some milk and whatnot for the weekend. It's a nice enough little trundle and has the added bonus of being productive.
However, Steve convinced me that it would be a better idea for me to go into town, maybe go to the park, have an ice cream, that kind of thing. I didn't take much convincing - it's just been far too gorgeous a day to waste.
So off I trundled into town. After a bit, Steve got on the motorbike and came to meet me for lunch at the Victoria Coffee House, and then we went for a walk in the park, Jephson Gardens. It's easy to control the scooter with one hand, so we were able to hold hands like any other couple - because it's nice, rather than for support. I think a few people wondered why he was holding a motorbike helmet though.
Regrettably I had to turn down Steve's offer of taking me out for dinner tonight, but nevertheless, he went and got some takeaway and we've had a wonderfully relaxing evening in. Ahhh.
In other news, I've started playing with Twitter. I'm not entirely sure how to find people on it, I think you need to exchange email addresses first so that one of you can send the other an invite? but really I am a long way from certain about that. If you use Twitter and you want to be added to my friends, post a comment containing your email address. I'll then invite you, but won't publish your comment, so your email address won't be shown to the world from here.
(edited to add tags)
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